Table 1.
Variables | Instruments | Cronbach α | Test-retest reliability | Assessment | |||||||
|
|
|
|
Baseline | Follow-up | ||||||
Demographics, personal, and family cancer history | Self-report [55] | —a | — | ✓b |
|
||||||
Tailoring variables | |||||||||||
|
Degree of relationship between proband-relatives (eg, first degree) | Self-report | N/Ac | N/A | ✓ |
|
|||||
|
Fear of cancer recurrence (for patients) | Concerns About Recurrence Scale [56], 4 items, 7-point Likert scale | .93 | 0.91 | ✓ |
|
|||||
|
Self-efficacy dealing with cancer (for patients) | Self-efficacy–HBOCd-related cancer [57], 14 items, 7-point Likert scale | .80 | 0.71 | ✓ |
|
|||||
|
Self-efficacy using genetic services | 1 item, 7-point Likert scale | N/A | N/A | ✓ |
|
|||||
|
Family support | Family Support in Illness [58], 10 items, 7-point Likert scale | .86 | 0.83 | ✓ |
|
|||||
|
Family hardiness | Family Hardness Index [59], 20 items, 7-point Likert scale | .90 | 0.82 | ✓ |
|
|||||
|
Satisfaction with genetic counseling (for tested individuals) | Multidimensional Impact of Cancer Risk Assessment [60], 19 items, 7-point Likert scale | .81 | — | ✓ |
|
|||||
|
Barriers and facilitators for genetic services | Barriers and facilitators for genetic services [61], 11 items, multiple choice | N/A | N/A | ✓ |
|
aNot available.
bThe variable will be assessed at the specific time frame.
cN/A: not applicable.
dHBOC: hereditary breast and ovarian cancer.