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. 2021 Jun 11;10(6):e26264. doi: 10.2196/26264

Table 2.

Instruments to assess primary and secondary outcomes.

Concepts Instruments Cronbach α Test-retest reliability Assessment




Baseline Follow-up
Primary outcomes

Proportion of informed relatives Website data N/Aa N/A b

Intention to inform relatives Informing Relatives Inventory [64], 68 items, 7-point Likert scale .86 c

Intention for genetic testing (untested relatives) 1 item, 7-point Likert scale N/A N/A
Secondary outcomes

Psychological distress Profile of Mood States [65], 37 items, 7-point Likert scale .86

Genetic literacy—genetic affinity Risk Factor Knowledge Index [39], 17 items, true, false, and do not know .89 0.85

Genetic literacy—cancer genetics Breast Cancer Genetics Index [66], 12 items, true, false, and do not know .82 0.81

Coping with stressful events Brief Cope [67], 25 items, 7-point Likert scale .81 0.78

Decision making—untested individuals Decisional Conflict Scale-HBOCd Genetic Testing [68], 16 items, 7-point Likert scale .96

Decision making—tested individuals Decisional Regret-Genetic Testing [69], 5 items, 7-point Likert scale .87
Intervention evaluation

Acceptability, detail, usefulness, relevance, and satisfaction Intervention Evaluation [62,70], 16 items, 7-point Likert scale

aN/A: not applicable.

bThe variable will be assessed at the specific time frame.

cNot available.

dHBOC: hereditary breast and ovarian cancer.