Table 2.
Concepts | Instruments | Cronbach α | Test-retest reliability | Assessment | |||||||
|
|
|
|
Baseline | Follow-up | ||||||
Primary outcomes | |||||||||||
|
Proportion of informed relatives | Website data | N/Aa | N/A | ✓b | ✓ | |||||
|
Intention to inform relatives | Informing Relatives Inventory [64], 68 items, 7-point Likert scale | .86 | —c | ✓ | ✓ | |||||
|
Intention for genetic testing (untested relatives) | 1 item, 7-point Likert scale | N/A | N/A | ✓ | ✓ | |||||
Secondary outcomes | |||||||||||
|
Psychological distress | Profile of Mood States [65], 37 items, 7-point Likert scale | .86 | — | ✓ | ✓ | |||||
|
Genetic literacy—genetic affinity | Risk Factor Knowledge Index [39], 17 items, true, false, and do not know | .89 | 0.85 | ✓ | ✓ | |||||
|
Genetic literacy—cancer genetics | Breast Cancer Genetics Index [66], 12 items, true, false, and do not know | .82 | 0.81 | ✓ | ✓ | |||||
|
Coping with stressful events | Brief Cope [67], 25 items, 7-point Likert scale | .81 | 0.78 | ✓ | ✓ | |||||
|
Decision making—untested individuals | Decisional Conflict Scale-HBOCd Genetic Testing [68], 16 items, 7-point Likert scale | .96 | — | ✓ | ✓ | |||||
|
Decision making—tested individuals | Decisional Regret-Genetic Testing [69], 5 items, 7-point Likert scale | .87 | — | ✓ | ✓ | |||||
Intervention evaluation | |||||||||||
|
Acceptability, detail, usefulness, relevance, and satisfaction | Intervention Evaluation [62,70], 16 items, 7-point Likert scale | — | — |
|
✓ |
aN/A: not applicable.
bThe variable will be assessed at the specific time frame.
cNot available.
dHBOC: hereditary breast and ovarian cancer.