Table 1.

Selected characteristics of included studies.

Study	Author affiliation of patient or public partner	Journal
Brett et al [36]	UK Clinical Research Collaboration; University/Users Teaching and Research Action Partnership	The Patient
Brett et al [37]	UK Clinical Research Collaboration; University/Users Teaching and Research Action Partnership	Health Expectations
Aslakson et al [38]	Patient/family member coinvestigator, Architecture by Design	Journal of Comparative Effectiveness Research
Jones et al [39]	Patient representative, Colon Aid PPIa Group, Yeovil District Hospital Foundation Trust	Annals of Surgery
Whitton et al [40]	Cochrane Skin Group	Cochrane Database of Systematic Reviews
Garvelink et al [41]	Caregiver representative in the Population Health and Practice-Changing Research Group of the Research Centre, CHU de Québec	Health Affairs
Morley et al [20]	Consumer representative, Cochrane Pregnancy and Childbirth	Research Involvement and Engagement
Souleymanov et al [42]	Harm Reduction Peer Street Outreach Coordinator, Queen West Central Toronto Community Health Centre	BMC Medical Ethics
Clarkson et al [33]	Members of the HoSt‐Db Programme Management Group	Journal of Advanced Nursing
Kronenberg et al [43]	Expert by experience	The British Journal of General Practice
Bethell et al [44]	Ontario Dementia Advisory Group	Dementia
Crocker et al [45]	National Institute for Health Research Oxford Biomedical Research Centre	BMJ
Evans et al [34]	North Bristol Microbiology Patient Panel	Health Expectations
Fergusson et al [11]	Patient Partner, SPORc National Steering Committee	Research Involvement and Engagement
Jennings et al [46]	RECOLLECT Lived Experience Advisory Panel	BMC Psychiatry
Jorgensen et al [47]	Patient and Public Representative	Qualitative Health Research
Pollock et al [48]	None, just location	Systematic Reviews
Price et al [49]	Citizen Researcher	Journal of Evaluation in Clinical Practice
Baines et al [50]	Volunteer Mental Health Patient-Research-Partner	Journal of Health Services Research & Policy
Evans et al [51]	Mojatu Foundation	BMJ Open
Gonzalez et al [52]	Patient Representative, Federal Joint Committee, Gemeinsamer Bundesausschuss	BMJ Open
Greenhalgh et al [4]	Patient Adviser, Nuffield Department of Primary Care Health Sciences, University of Oxford	Health Expectations
McCarron et al [53]	Patient coinvestigators, Community Health Sciences, University of Calgary	Systematic Reviews
McGrath et al [54]	Public contributor	The International Journal on Drug Policy
Moore et al [55]	Biomedical Research Centre Patient & Public Involvement Group, University College London Hospitals	Health Technology Assessment
Oldfield et al [56]	General Patient and Family Advisory Council, Yale-New Haven Hospital	Journal of General Internal Medicine
Planner et al [57]	NIHRd School for Primary Care Research	Trials
Scholz et al [58]	Consumer representative	Palliative Medicine
Sherriff et al [35]	Health4LGTBI Network	Health Expectations
Bird et al [59]	Patient Partner, McMaster University	Health Expectations
Brush et al [60]	Friends of Parkside	Health Education & Behavior
Gordon et al [61]	COMENSUSe Group	Medical Teacher
Graham et al [62]	Radcliffe Women’s Health Patient and Public Participation Panel	BJOG
Hoekstra et al [14]	SCIf Guiding Principles Consensus Panel	Health Research Policy and Systems
Hung et al [63]	Community Engagement Advisory Network	Dementia
Maidment et al [64]	PPI representative	BMC Geriatrics
Arnstein et al [15]	Consumer Forum, National Cancer Research Institute; Research Involvement and Engagement; International Alliance of Patients’ Organizations	Research Involvement and Engagement

^aPPI: patient and public involvement.

^bHoST-D: Home Support in Dementia.

^cSPOR: strategy for patient-oriented research.

^dNIHR: National Institute for Health Research.

^eCOMENSUS: Community Engagement and Service User Support.

^fSCI: spinal cord injury.