TABLE 1.
Characteristics of the study sample and corresponding PEIRS‐22 scores
| Characteristics |
Study sample Number (%), n = 119 |
PEIRS‐22 |
|---|---|---|
| Mean (standard deviation), n = 117 | ||
| Country | ||
| Canada | 99a (83.2) | 84.34 (15.7) |
| United States | 20 (16.8) | 85.75 (13.6) |
| Gender | ||
| Male | 32 (26.9) | 81.38 (15.4) |
| Female | 74a (62.2) | 86.43 (13.4) |
| Gender‐diverse | 10 (8.4) | 82.9 (27.0) |
| Other/Missing | 3 (2.5) | 80.0 (4.0) |
| Age in years | ||
| 17‐35 | 51b (42.9) | 86.4(13.0) |
| 36‐65 | 50b (42.0) | 83.4 (18.6) |
| ≥65 | 17 (14.3) | 83.2 (11.6) |
| Prefer not to say | 1 (0.8) | – |
| Education | ||
| High school or less | 28 (23.5) | 87.14 (12.7) |
| Some post‐secondary to bachelor's degree | 60a (50.4) | 84.9 (17.9) |
| Master's, doctoral degree or above | 30 (25.2) | 81.67 (12.0) |
| Other | 1 (0.8) | – |
| Household income (US dollars) | ||
| Under $24 000 | 30b (25.4) | 85.31 (13.9) |
| $24 001 to $80 000 | 34b (28.8) | 81.94 (18.2) |
| Over $80 000 | 28 (23.7) | 83.39 (17.3) |
| Prefer not to say | 26 (22.0) | 87.92 (10.1) |
| Ethnicity/Racial groupc | ||
| Indigenous | 16 (13.4) | 91.0 (9.6) |
| White | 74b (62.2) | 83.9 (16.3) |
| Other | 29b (24.4) | 83.6 (15.1) |
| Type of partnerd | ||
| Patient | 109 (91.5) | 84.3 (15.8) |
| Family/Friend/Unpaid caregiver | 22 (18.5) | 87.4 (9.8) |
| Type of teame | ||
| Local | 52a (43.7) | 86.4 (10.2) |
| Regional | 15 (12.6) | 87.0 (11.3) |
| National | 41 (34.5) | 81.1 (19.7) |
| International | 8 (6.7) | 85.6 (15.1) |
| Research stagef | ||
| Preparation | 33 (27.7) | 84.1 (12.5) |
| Carrying‐out | 85b (71.4) | 84.8 (16.3) |
| Dissemination | 37 (31.1) | 85.6 (10.9) |
Indicates 2 participants missing in data analysis.
Indicates 1 participant missing in data analysis.
The Indigenous category includes people of mixed background. The ‘other’ category includes people of other mixed backgrounds, and those who identified as being of African descent (Black, n = 11), Asian, Chinese, West Asian, Filipino, Hebrew, Jewish, Latin American or Portuguese.
At‐risk youths would prefer being identified as person with lived experience rather than as patients.
Local means within an organization. Regional means spread across a single province/territory in Canada or state/metropolitan area in the USA. National means spread across two or more provinces/territories or state/metropolitan area. International means Canada/USA and one or more other countries.
Preparation includes identify/prioritize research question and seek funding. Carrying‐out includes recruit participants, collect data, analyse data and interpret data. Dissemination includes share results, help findings to be used and by extension assess research impact.