Table 1.

Sociodemographic characteristics of caregivers

Characteristic of caregiver	USA (n = 25)	Netherlands (n = 5)	Total (N = 30)
Age (years)
Mean (SD)	44.6 (9.8)	42.8 (2.6)	44.3 (9.0)
Median (range)	45.0 [26.0–61.0]	42.0 [40.0–47.0]	43.0 [26.0–61.0]
Relationship to individual with AS, n (%)
Mother/step-mother	23 (92.0%)	5 (100.0%)	28 (93.3%)
Father/step-father	2 (8.0%)	0 (0.0%)	2 (6.7%)
Ethnicity, n (%)a,b
Hispanic or Latino	2 (8.0%)	0 (0.0%)	2 (8.0%)
Not Hispanic or Latino	22 (88.0%)	0 (0.0%)	22 (88.0%)
Missing	1 (4.0%)	0 (0.0%)	1 (4.0%)
Racial background, n (%)
White	20 (80.0%)	5 (100.0%)	25 (83.3%)
Asian	2 (8.0%)	0 (0.0%)	2 (6.7%)
Native Hawaiian or other Pacific Islander	1 (4.0%)	0 (0.0%)	1 (3.3%)
American Indian or Alaska Native	1 (4.0%)	0 (0.0%)	1 (3.3%)
Otherc	1 (4.0%)	0 (0.0%)	1 (3.3%)
Marital status, n (%)
Married	22 (88.0%)	3 (60.0%)	25 (83.3%)
Divorced/separated	2 (8.0%)	0 (0.0%)	2 (6.7%)
Single, in a relationship	1 (4.0%)	1 (20.0%)	2 (6.7%)
Otherd	0 (0.0%)	1 (20.0%)	1 (3.3%)
Employment status, n (%)
Employed, full-time or part-time	20 (80.0%)	3 (60.0%)	23 (76.7%)
Homemaker	5 (20.0%)	1 (20.0%)	6 (20.0%)
Disabled	0 (0.0%)	1 (20.0%)	1 (3.3%)
Education status, n (%)
Secondary/high school	1 (4.0%)	0 (0.0%)	1 (3.3%)
Associate degree, vocational, technical or trade school	1 (4.0%)	1 (20.0%)	2 (6.7%)
Some college (< 1 year)	2 (8.0%)	0 (0.0%)	2 (6.7%)
Some college (2–3 years)	5 (20.0%)	0 (0.0%)	5 (16.7%)
University/college degree	8 (32.0%)	2 (40.0%)	10 (33.3%)
Postgraduate degree	8 (32.0%)	1 (20.0%)	9 (30.0%)
Other educatione	0 (0.0%)	1 (20.0%)	1 (3.3%)

SD standard deviation

^aUSA only

^bOne participant did not answer this question

^cOther race includes ‘White and Indian’ (n = 1)

^dOther marital status includes ‘living together’ (n = 1)

^eOther education includes Middelbaar Beroeps Diploma (n = 1)