Table 2.

How Pediatric Palliative Care Research Can Benefit Cooperative Groups

Research domain	Potential benefit to cooperative group	Example from our study
Pediatric data harmonization	Data elements specific to pediatrics	Added parent-proxy child, disease, and palliative care demographics to standardized data elements
Pediatric measures	Contribute pediatric self-report and parent proxy report measures to cooperative group resources	Added pediatric measures to the PCRC instrument database
Pediatric data sharing	Data for pediatric secondary analyses, pilot research projects, and aggregated analyses	Study database and data dictionary deposited into the PCRC data repository
Increased visibility	Increased cooperative group and pediatric palliative care research visibility	PI has established strong collaborations with the PCRC and its members since the beginning of the study, leading to invited presentations at the annual investigator meeting and leadership positions within the organization