Table 1. Demographics and physical function.
| Adults (n = 811) | Children (n = 67) | ||
|---|---|---|---|
| Female (%) | 427 (52.7) | 26 (38.8) | |
| Age, mean (SD) | 51.4 (17.3) | 10 (3.2) | |
| Non-amb, n (%) | 239 (30) | 20 (29.9) | |
| Ventilation | |||
| NIV, n (%) | 90 (11.1) | 4 (6.0) | |
| IV, n (%) | 54 (6.7) | 0 | |
| None, n (%) | 649 (80.0) | 62 (92.5) | |
| Impaired cough, n (%) | 267 (33.7) | 41 (61.2) | |
| Personal assistance | |||
| Full or part time, n (%) | 274 (33.8) | 13 (19.4) | |
| Other (Leisure, school, work), n (%) | 104 (13.5) | 32 (47.8) | |
| Number of assistants pr week, median (range) | 4 (1–30) | 2 (1–8) | |
| Occupational status | |||
| Full time, n (%) | 96 (11.8) | - | |
| Part time, n (%) | 43 (5.3) | - | |
| Self-employed, n (%) | 31 (3.8) | 9 (13.4) | Kindergarten/nursery |
| Job-special conditions, n (%) | 138 (17.0) | 9 (13.4) | Special school |
| Student | 59 (7.3) | 48 (71.6) | Primary school |
| Long-term sickness leave or unemployed | 53 (6.5) | 3(4.5) | At home |
| Age or disability pension | 438 (54.0) | - | |
| Other | 46 (5.7) |
Non-amb: Non-ambulatory; NIV: Non-invasive ventilation; IV: Invasive Ventilation.