TABLE 1.

Patient characteristics as reported by their primary caregivers

	Patient characteristics as reported by their primary caregivers
	Primary caregivers believe their child is not in good overall health due to SCD. n = 21					Primary caregivers their believe child is in good health despite SCD. n = 8
	Chronic pain	Stroke	Chronic transfusion therapy	Taking hydroxyurea	HLA-identical sibling match	Chronic pain	Chronic transfusion therapy	Taking hydroxyurea	HLA-identical sibling match
HbSS	17	2	1	17	4	0	5	2	3
HbSß	2	0	0	1	0	0	0	0	0
HbSC	2	1	1	0	0	0	0	0	0