TABLE 2.

Families are learning about curative options through social networks, social media, and news media

Subthemes	Quotes
Learning through community and social networks	“We just found a family member in church who just went through it [HCT] last year. The child is doing very well.”
Interaction with support groups on social media	“I am in the BMT group and the sickle cell group. I have been reading and seeing what is going on. Doing my own research on it. I feel in my heart that I should do this for her.” “I had heard about it [HCT]. I am part of a Facebook sickle united support group. I learned about it through there.”
Parent initiated internet research	“I knew that it [HCT] was the only cure. That’s what I researched online. That’s what I thought.”
Stories on news media	“About a month or two ago there was the CBS documentary about sickle cell about the gene transplant [sic]. I told her [daughter] to go listen.” “And then, of course you know, the 60 Minute story [about gene therapy] came out.”