TABLE 2.

Final 32‐item facioscapulohumeral muscular dystrophy specific Rasch‐built overall disability scale

	Are you able to:	Unable to perform	Able to perform, but with difficulty	Easily performed, without difficulty
		0	1	2
1	Fill in a form
2	Open a door with a key
3	Peel an apple/orange
4	Clip your finger nails
5	Pick up a small object
6	Button a shirt/blouse
7	Slice vegetables
8	Wash your lower body
9	Dress your lower body
10	Sit down from a standing position
11	Take a shower
12	Put laundry in the washing machine
13	Get out of a car
14	Catch an object, e.g. a ball
15	Remain standing for a short period of time, e.g. max 15 minutes
16	Bend forward and pick something up
17	Clean the fridge
18	Clean the bottom of a kitchen cupboard
19	Mop a floor
20	Kick a ball
21	Carry a tray
22	Stand up from lying down
23	Get in or out of a bath
24	Stand on one leg
25	Move a table
26	Stand up from a squatting position
27	Carry and put down a heavy object
28	Dance
29	Walk through the dunes
30	Walk outdoors, for more than 0.6 mile (1 km)
31	Jump
32	Run

The final 32‐item facioscapulohumeral muscular dystrophy specific Rasch‐built overall disability scale (FSHD‐RODS) is presented that fulfilled all Rasch model expectations. The easiest item was found to be ability to fill in a form, and the most difficult was ability to run (for 50 years and older). Note: the presented raw scores in the Table should be transformed to interval scores (available on request) for proper application, and permission to use this scale should be obtained through the authors. An instruction manual is also available to standardize and promote proper interpretation of the items (also available on request).