Table 1.

Suggested key points for high-quality PILs.

Use adequate readability formulas to assess the reading level	Aim: to keep the content within the range for acceptable and readable content.
Follow guidelines for written health information	Aim: keeping features, layout and illustrations simple, clean and well arranged.
Evaluate the content aimed at the target group.	Aim: to include both patient and caregiver perspective. Patient perspective: Information on expected disease related changes on social and intimate level. Caregiver perspective: Information on expected disease related changes, expected relationship changes and coping strategies.
Cover unmet communication needs	Aim: To support clinical consultations. Patient needs: Specific information on relationship change, sexual health guidance. Clinician needs: Sexual health information.
Assess comprehensibility	Aim: to evaluate the written health information. Assess retained knowledge through questionnaires Comprehensibility test