Information about options |
Describes health condition or problem |
Yes |
Important feature of a roadmap |
Describes a decision |
Yes, qualified |
A Roadmap can highlight decisions to come, and can direct users to DAs that provide more detail |
Describes options available |
Yes, qualified |
A Roadmap might describe general treatment options, for example, medications that might be prescribed, but should avoid providing too much detail (see below) |
Describes natural course of health condition or problem |
Yes |
Important feature of a roadmap; this is something that roadmaps should do well |
Describes positive and negative features of each option |
No |
Roadmaps can highlight decisions to come, but will generally not provide detailed information about specific decisions (a task better suited to a DA) |
Makes it possible to compare features |
No |
Shows negative and positive features with equal detail |
No |
Probabilities of outcomes |
Provides information about outcome probabilities; specifies groups for whom outcome applies, rates of outcomes, time periods, and presents probabilities in multiple formats |
No |
Roadmaps should avoid providing details such as probabilities. Detailed information about specific options, such as probabilities, is unlikely to be read by a patient who has not reached that point in the road. Roadmaps can refer patients to DAs when available and appropriate. |
Values |
Helps patients imagine what it is like to experience physical, psychological, and social effects of options |
Yes, qualified |
Rather than effects of specific options, a Roadmap could help patients imagine what it is like to experience the disease at different points in time and given different treatment paths |
|
Asks patients to think about what matters most to them |
Yes, qualified |
A Roadmap should provide values clarification, but should be related to broad goals and preferences rather than preferences for discrete treatment options |
Decision guidance |
Provides step-by-step way to make a decision |
No |
A Roadmap does not address a specific decision |
|
Includes worksheets or questions to use when talking with provider |
Yes, qualified |
Could help patients articulate their goals and values related to their care trajectory
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Development |
Finding out what patients need |
Yes |
Patients should be involved in the development process, to identify what information they need and how to organize and present it optimally |
Finding out what health professionals need |
Yes |
Health professionals should be involved to identify key areas of communication difficulty, such as managing patient expectations |
Expert review by patients and health professionals not involved in developing the tool |
Yes |
Important aspect of Roadmap development |
Field tested |
Yes |
Important aspect of Roadmap development |
Plain language |
Reports readability levels |
Yes |
Important aspect of Roadmap development and readability should be at 7th grade or below |
Decision support tool evaluation |
There is evidence that the tool helps patients improve their knowledge |
Yes |
Roadmaps should improve knowledge about disease and accurate expectations for the future |
|
There is evidence that the tool improves the match between the features that matter most to the patient and the option chosen |
Yes, qualified |
In a Roadmap, the “option chosen” may be reconceptualized as the path taken, for example, an aggressive, life-sustaining path versus a less intensive treatment path |