Table 4.
Main theme | Subtheme | Example quote |
---|---|---|
Misunderstanding autism and autistic traits | Pre-autism diagnosis | “When I was in hospital, I kept getting told off for walking on tip toes and for fidgeting a lot . . . they thought I was doing these things to burn more calories, except I’d been doing them for as long as I could remember.” |
Post-autism diagnosis | “I think the co-existence of [autism] as well as the eating disorder is something that just makes some adults teams feel, “It’s just too complicated, we just don’t really want to know”.” | |
One treatment does not fit all | Challenges of CBT | “With the CBT, maybe the problem is that they assume you have lot of these skills already . . . Therefore, I couldn’t even begin to make changes, because I don’t have any of those foundational skills.” |
Challenges of group therapy | “I’m largely silent in any sort of group situation because I don’t know what’s expected of me. I’m worried of saying the wrong thing or I worry about misinterpreting people.” | |
Alternative therapeutic approaches | “DBT was really helpful . . . we spent a long, long time talking through emotions, identifying them and trying to think about how to regulate, how to manage them . . . DBT was about [emotion regulation] skills, and that was really important.” | |
Improving accessibility and engagement within services | Adapting communication styles | “It’s all about changing perceptions, it’s all about putting an autistic lens on and saying, how could I explain this differently?” |
Adapting service environments | “Noise . . . is something that has got to two patients and they’ve found that really difficult . . . we made allowances, in terms of music therapy taking place as far away from her as possible.” |
CBT: cognitive behavioural therapy; DBT: dialectical behaviour therapy.