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. 2021 Jun 25;12:677551. doi: 10.3389/fneur.2021.677551

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Copyright © 2021 Traschütz, Reich, Adarmes, Anheim, Ashrafi, Baets, Basak, Bertini, Brais, Gagnon, Gburek-Augustat, Hanagasi, Heinzmann, Horvath, de Jonghe, Kamm, Klivenyi, Klopstock, Minnerop, Münchau, Renaud, Roxburgh, Santorelli, Schirinzi, Sival, Timmann, Vielhaber, Wallner, van de Warrenburg, Zanni, Zuchner, Klockgether, Schüle, Schöls, PREPARE Consortium and Synofzik.

This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

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Platform and database infrastructure of the ARCA Registry. Graphical user interface of the web-based ARCA Registry, with display of a representative electronic case report form (eCRF) and embedding in the larger database infrastructure. The front-end of the software and the main core of eCRFs are shared with other major ataxia and rare disease registries (e.g., the HSP registry used by the TreatHSP network), making the ARCA Registry user friendly and convenient for joint analysis of data across genetic ataxias, sporadic ataxias, and hereditary spastic paraplegia (HSP) registries.