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. 2021 Jun 25;12:677551. doi: 10.3389/fneur.2021.677551

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Copyright © 2021 Traschütz, Reich, Adarmes, Anheim, Ashrafi, Baets, Basak, Bertini, Brais, Gagnon, Gburek-Augustat, Hanagasi, Heinzmann, Horvath, de Jonghe, Kamm, Klivenyi, Klopstock, Minnerop, Münchau, Renaud, Roxburgh, Santorelli, Schirinzi, Sival, Timmann, Vielhaber, Wallner, van de Warrenburg, Zanni, Zuchner, Klockgether, Schüle, Schöls, PREPARE Consortium and Synofzik.

This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

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Recruitment and patient characteristics in the ARCA Registry. (A) Recruitment and coverage. Recruitment of patients is continuous since 2013, reaching more than 800 patients with up to eight longitudinal assessments by the end of 2020. Longitudinal data with at least two assessments are available in about 200–300 patients. (B) Baseline characteristics of patients. Patients in the ARCA Registry span the full range of ages and disease stages. (C) Genetic diagnoses in the ARCA Registry, with a list of the 10 most frequent genetic causes.