Table 2.
Data Extracted From 28 Papers Included in the Review
| Author & location | Aims | Total participants (any ethnicity) | Total Black participants and characteristics |
|---|---|---|---|
| Adamson (2001); United Kingdom | To explore awareness, recognition, and understanding of dementia | 30 BAC, SA | 18 carers 15F; 3M |
| Adamson & Donovan (2005); United Kingdom | To explore experiences of informal caring for older relative with dementia | 36 BAC, SA | 21 carers (b) |
| Lawrence et al. (2008); United Kingdom | To explore attitudes, experiences, and needs of carers of people with dementia | 32 BC, SA, WB | 10 carers 9F; 1M |
| Lawrence et al. (2011); United Kingdom | To explore attitudes, experiences, and beliefs of dementia | 30 PwD BC, SA, WB | 11 PwD 8F; 3M |
| Mukadam et al. (2011); United Kingdom | To explore beliefs and attitudes to help-seeking for dementia | 18 BA/BC, SA, W, Ao, Chi | 5 carers (b) |
| Berwald et al. (2016); United Kingdoma | To identify barriers to help-seeking for memory problems | 50 BA, BC, BB, 1IndoC | 42 members of the public 4 PwD 4 carers 30F; 20M |
| Cheston et al. (2017); United Kingdom | To establish dementia experiences and needs of people BME | 48 (b) BC, SA, Chi | 2 PwD 8 carers (b) members of the public |
| Sterritt & Pokorny (1998); United Statesa | To explore meaning of caregiving to AA caregivers of relatives with Alzheimer’s disease | 9 AA | 9 carers 9F |
| Fox et al. (1999); United Statesa | How race and ethnicity matter in recognition, meaning, and responses to dementia in AA caregivers? | 10 AA | 10 carers (b) |
| Lampley-Dallas et al. (2001); United Statesa | To assess perceived needs of AA caregivers of people with dementia and expectations of health care system | 13 AA | 13 carers 11F; 2M |
| Cloutterbuck & Mahoney (2003); United Statesa | To explore perceptions and experiences of AA caregivers in getting dementia diagnosis for relatives | 7 AA | 7 carers 5F; 2M |
| Belgrave et al. (2004); United Statesa | Explanations of Alzheimer’s disease from perspectives of AA carers and patients | 36 families AA | 41 carers (b) PwD |
| Toth-Cohen (2004); United Statesa | To explore factors that may influence appraisal of upset in Black caregivers of people with dementia in response to relatives’ memory and behavior problems | 15 AA | 15 carers 12F; 3M |
| Jett (2006); United Statesa | To discover the cultural and linguistic variations in the definition, recognition, explanation of, and response to, dementia as it is experienced in the AA community | 14 AA | 14 members of the public 13F; 1M |
| Gerdner et al. (2007); United Statesa | To describe experience of AA caregiver understanding of chronic confusion and experience of family caregiving | 15 carers AA | 15 carers 11F; 4M |
| Vickrey et al. (2007); United States | To explore contrasts and commonalities in caregiving experiences across four racial/ethnic groups, and to obtain data to aid in designing future interventions to improve the quality of dementia care | 47 carers AA, W, His, Chi | 19 carers 34F; 13M |
| Gerdner & Simpson (2009); United Statesa | To explore the primary concerns related the elder’s condition and access to and use of health and community services | 15 AA | 15 carers 11F; 4M |
| Hughes et al. (2009); United Statesa | To explore factors associated with decision to seek a diagnosis for a family member with dementia in AA caregivers | 17 AA | 17 carers 14F; 3M |
| Stansbury, Harley, et al. (2010); United Statesa | To determine AA clergy’s awareness of Alzheimer’s disease and willingness to provide support to elders and their family/caregivers | 9 clergy (Baptist) AA | 9 members of the public 9M |
| Stansbury, Marshall, et al. (2010); United Statesa | To explore rural AA clergy knowledge and beliefs of Alzheimer’s disease | 9 clergy (Baptist) AA | 9 members of the public 9M |
| Sullivan & Beard (2014); United States | To examine how sociocultural aspects of religion/spirituality influence experiences of living with Alzheimer’s disease for diverse diagnosed seniors and their families | 75 AA, W | 43 PwD & carers 42F; 1M |
| Roberts et al. (2015); United States | To explore how three ethnoracial communities experience cognitive decline and aging | 75 people AA, W, Lat | 16 carers & members of public (b) |
| Lindauer et al. (2016); United Statesa | To explore the meaning AA caregivers ascribe to the dementia-related changes in their care recipients | 11 AA | 11 carers (b) |
| Potter et al. (2017); United Statesa | How AA families recognize and respond to perceived changes in their older relatives’ cognitive abilities? | 27 families (67 people) AA | 27 PwD 18F; 9M 40 carers 34F; 6M |
| Moss et al. (2018); United Statesa | To examine understanding of end-of-life decision-making terminology among family caregivers of AA older adults with dementia | 18 AA | 18 carers 17F; 1M |
| Epps et al. (2019); United Statesa | To examine and characterize family networks of AA family caregivers who provide care to family members with dementia | 18 families AA | 26 carers (b) |
| van Wezel et al. (2016); The Netherlands | To describe the perspectives of female family carers of three ethnic groups about providing care to a relative with dementia | 69 Surinamese Turkish Moroccan | 17 carers 17F |
| van Wezel et al. (2018); The Netherlands | To explore how female family carers from three ethnic groups explain and describe the dementia of their close relative | 69 Surinamese Turkish Moroccan | 17 carers 17F |
Note: AA = African American; BA = Black African; BC = Black Caribbean; BB = Black British; AC = African and Caribbean; BAC = Black African and Caribbean; SA = South Asian; W = White; WB = White British; Chi = Chinese; Ao = Asian other; Lat = Latino; PwD = people with dementia; BME = Black and Minority Ethnic.
aPapers specific to Black participants.
(b)Number or details not specified in the study.