. 2021 Jul 2;9:689485. doi: 10.3389/fped.2021.689485

Table 7.

Family functioning and child quality of life.

Instrument name	Additional domains	Suggested age range	Data source	Training for administration	Time and method of administration	Cost information	Website/additional info
Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) ^p^,^c^,^e^,^s	Cognitive, Physical, Social	5–18 years	Parent or caregiver	None	20–40 min, in person	Free	CPCHILD
Child Health Questionnaire (CHQ) ^p^, ^c^, ^e^, ^s	Cognitive, Physical, Social	5–18 years	Self-report, parent or caregiver	None	5–15 min; in person, via mail, or electronic	Fee not available	CHQ
Family Assessment Device (FAD)	–	At least 12 years	Self-report, parent or caregiver	None	15–20 min, in person	Free	FAD
Glasgow Outcome Scale-Pediatrics (GOSE-Peds) ^p^,^c^,^e^,^s	Cognitive, Physical, Social	Up to 16 years	Self-report, parent or caregiver, clinician	None	15 min, in person or via phone	Free	–
Pediatric Quality of Life Inventory (PedsQL) ^p^, ^c^, ^e^, ^s	Cognitive, Physical, Social	1 month−25 years	Self-report, parent or caregiver	None	4 min; in person, by phone, or via mail	Free for unfunded research; $1,089 for funded research	PEDSQL

Italicized instruments have been validated with children with disabilities. PICS-p domains are represented as follows:

physical health,

cognitive health,

emotional health,

social health.