Table 3.

Novel Intervention Tools and Platforms.

Novel Tool/Platform	Goal	Target
Biobanking and Personalized Medicine Community Advisory Board (CAB)	To bridge the academic-community gap an enhance participant and public education regarding ELSI related to biobanking and stroke genomics.	Stroke community and general public
Neurobiobank Expert Consensus Guideline	Government and professional association sanctioned expert consensus ELSI stroke biobanking and genomics policy guideline document to enhance best practices among professionals involved in biobanking and genomics research	Stroke community, stroke genomic and neurobiobank researchers
Biobanking training programs (workshops, seminars)	To enhance biobanking awareness and understanding of related ELSI issues	Researchers, ethics committee members, policy makers, public health practitioners, health administrators, and CAB members
Biobanking and Precision Medicine Community Awareness Programs	To promote public understanding regarding biobanking and stroke genomics ELSI	Faith-based organizations, lay public, print and electronic media, mHealth technologies, social media platforms, and film industry such as Nollywood
Stimulate the establishment of the African Neurobiobank Network	To provide a platform for regular engagement of biobank researchers, development of harmonized guidelines for neurobiobanking in SSA based on international best practices	Stroke community, stroke genomic, and neurobiobank researchers
Development of informative video on neurobiobanking, genomics and precision medicine	To enhance biobanking, stroke genomics, and precision medicine literacy and related ELSI	Stroke community (patients and persons at risk, caregivers, advocates) and lay public
Development of training video on neurobiobanking and precision medicine	To enhance biobanking, stroke genomics and precision medicine literacy and related ELSI	Researchers and academics (stroke, genomics, biobanking) and ethics committee members
Development of comics and case vignettes relating to neurobiobanking, genomics, and precision medicine	To use comics and case vignettes to illustrate key ELSI-related scenarios and how to deal with them	Stroke community, lay public, and especially young people
Capacity training program in genetic counseling and biobanking science	To develop a crop of professionals with relevant competences in neurobiobanking and genetic counseling.	Biomedical scientists, public health professionals, postgraduate students with relevant qualifications

Note. ELSI = ethical, legal, and social implications; SSA = sub-Saharan Africa.