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Participant characteristics (n=61)
| Participants | n (%) |
| parents | 4 (7%) |
| patients | 57 (93%) |
| age (yrs) at diagnosis (mean ± SD) | 20.7 ± 7.2 |
| Sex | |
| male | 39 (64%) |
| female | 22 (36%) |
| Age (yrs) | |
| range | 20-74 |
| mean ± SD | 44.9 ± 12.4 |
| median | 21 |
| Education | |
| less than high school | 2 (3.3%) |
| high school/vocational | 6 (9.8%) |
| college/university | 35 (57.4%) |
| post-gradutate | 18 (29.5%) |
| Health literacy | |
| adequate | 53 (86.9%) |
| inadequate | 8 (13.1%) |
