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. Author manuscript; available in PMC: 2021 Jul 22.
Published in final edited form as: Proc ACM Hum Comput Interact. 2021 Apr;5:10.1145/3449147. doi: 10.1145/3449147

Table 3:

Technological Design Reflection

Goal Technical Approaches Potential benefits Shadow side
Helping conceal or reveal physical aspects of the condition (FilterFace) Obfuscating or manifesting symptoms through image or audio manipulation Offering greater control over the condition “narrative” Reinforces problematic norms (e.g., linking looks to competence); Burden on individual
Sharing one’s current state for others (Pain Level Indicating System) Sensing or taking input; output for coworkers via ambient or other means Making it less burdensome to share the current status of one’s symptoms Relying on people to care; Burden on individual; Potential threat to career
Increasing understanding of one’s own condition (Make-Your-Own) Building the narrative of a chronic condition using templates; output printed or digital (e.g., email signature) Showing a scientific basis of the condition as well as specific tactics to help (or not harm) someone Burden on individual; potential threat to career
Targeting attitudinal change at institutional level (VR analogies) Immersive media or sensory systems Increasing empathy and understanding Relying on people to care