Table 3:
Technological Design Reflection
| Goal | Technical Approaches | Potential benefits | Shadow side |
|---|---|---|---|
| Helping conceal or reveal physical aspects of the condition (FilterFace) | Obfuscating or manifesting symptoms through image or audio manipulation | Offering greater control over the condition “narrative” | Reinforces problematic norms (e.g., linking looks to competence); Burden on individual |
| Sharing one’s current state for others (Pain Level Indicating System) | Sensing or taking input; output for coworkers via ambient or other means | Making it less burdensome to share the current status of one’s symptoms | Relying on people to care; Burden on individual; Potential threat to career |
| Increasing understanding of one’s own condition (Make-Your-Own) | Building the narrative of a chronic condition using templates; output printed or digital (e.g., email signature) | Showing a scientific basis of the condition as well as specific tactics to help (or not harm) someone | Burden on individual; potential threat to career |
| Targeting attitudinal change at institutional level (VR analogies) | Immersive media or sensory systems | Increasing empathy and understanding | Relying on people to care |