Table 2.
SickleGenAfrica year 1 focus groups: participants at each study site
| Study site/participants and target number | Accra | Kumasi | Abuja | Kano | Lagos | Dar es salaam |
| Parents/caregivers of children with SCD (4) | 4 | 4 | 3 | 4 | 3 | 4 |
| Adults with SCD (4) | 4 | 4 | 2 | 3 | 4 | 4 |
| Patient association/support group (2) | 2 | 2 | 2 | 2 | 2 | 2 |
| Community leaders (3) | 3 | 2 | 2 | 2 | 3 | 3 |
| Doctors (2) | 2 | 2 | 2 | 2 | 2 | 2 |
| Hospital nurse (1) | 1 | 1 | 1 | 1 | 1 | 1 |
| Community nurse (1) | 1 | 1 | 1 | 1 | 1 | 1 |
| Community health worker (1) | 1 | 1 | 1 | 1 | 1 | 1 |
| Government health representatives (2) | 2 | 2 | 2 | 2 | 2 | 2 |
| Total number | 20 | 19 | 16 | 18 | 19 | 20 |
| Proportion of targeted number (%) | 100 | 95 | 80 | 90 | 95 | 100 |
SCD, sickle cell disease; SickleGenAfrica, Sickle Cell Disease Genomics of Africa Network.