Table 1.

The participants who completed the full survey

	N (%)
Relation to child
Mother	133 (91%)
Father	8 (6%)
Other family member	5 (3%)
Age of participants’ children (years)
0–4	50 (34%)
5–9	38 (26%)
10–14	39 (27%)
15–19	18 (12%)
20–25	1 (1%)
Time since initial gastrostomy surgery (years)
<1 year	15 (10%)
1–2	41 (28%)
3–4	27 (18%)
5+years	63 (43%)
Type of gastrostomy device that the child has or previously had *
PEG tube	73 (50%)
Gastrostomy button (MINI or Mic-Key)	115 (79%)
Another device (eg, GJ tube)	23 (16%)

*Some children had more than one gastrostomy device, for example, some children had a PEG tube initially which was later changed to a gastrostomy button.

GJ, gastrojejunostomy; PEG, percutaneous endoscopic gastrostomy.