Table 3.

Sources of ongoing support: how helpful are they?

	Very helpful	Quite helpful	Not very helpful	Not applicable
Contacting your community nurse	90 (62%)	28 (19%)	13 (9%)	15 (10%)
Contacting your hospital team	34 (23%)	37 (25%)	38 (26%)	37 (25%)
Facebook groups	54 (37%)	67 (46%)	11 (8%)	14 (10%)
Conversations with other parents of children with similar needs	82 (56%)	47 (32%)	3 (2%)	14 (10%)
Written information booklets provided by a healthcare professional	28 (19%)	68 (47%)	32 (22%)	18 (12%)
NHS websites	15 (10%)	55 (38%)	52 (36%)	24 (16%)
Charities	25 (17%)	53 (36%)	19 (13%)	49 (34%)
Videos	29 (20%)	50 (34%)	17 (12%)	50 (34%)