Table 2b.

Patient engagement characteristics of included studies (n=30).

Study details	Method of stakeholder recruitment						Stage of research where patient partners contributed
	Partnering with other organization	Social marketing	Other	Community outreach	Health system	N/R	Education	Funding	Priority setting	Study design	Data collection	Data analysis	Dissemination of results	Awareness
Rheault et al. [18]	√								√
van den Berg et al.[19]						√			√	√
Boenink et al.[20]						√			√	√
Russell et al.[21]	√	√					√		√					√
Tamagnini et al.[22]	√√						√		√	√				√
Frazier et al.[23]	√	√							√
Talebizadeh et al.[24]			√			√			√	√
McDonnell et al.[25]	√	√							√	√
Parsons et al.[26]	√				√				√
Zoeller [27]						√			√				√
Filocamo et al.[28]						√	√		√√	√			√	√
Black and Brockway-Lunardi[29]	√						√	√	√					√
Godard et al. [30]	√												√
*Haga et al.[31]		√					√						√	√
*O'Daniel et al.[32]		√					√
Terry et al.[33]	√	√					√		√	√			√
Pulver et al.[34]				√			√
Arturi [35]			√				√	√	√				√	√
Baart and Abma [36]	√						√		√					√
Boon and Broekgaarden [37]						√	√	√	√					√
Van Olphen et al. [38]	√						√	√					√
Haddow et al.[39]						√	√
Riter and Weiss[40]	√	√					√
Mollan et al. [42]		√								√
Costello and Dorris[43]	√												√
Davies et al. [45]						√	√		√
Taruscio et al.[46]			√				√		√
Moore et al.[47]	√						√			√			√
Mahler and Besser[48]				√			√
Birch et al. [49]	√		√										√	√
Total (%)⁎⁎	15 (52)	7 (24)	4 (14)	2 (7)	1 (3)	8 (28)	17 (59)	4 (14)	18 (62)	9 (31)	0 (0)	0 (0)	10 (34)	9 (31)

Study details	Level of engagement
	Awareness/Education	Inform	Consult	Involve	Collaborate	Empower
Rheault et al. [18]				√	√
van den Berg et al.[19]			√		√
Boenink et al.[20]				√	√
Russell et al.[21]	√	√	√	√
Tamagnini et al.[22]	√	√	√	√	√
Frazier et al.[23]			√
Talebizadeh et al.[24]			√
McDonnell et al.[25]		√	√	√
Parsons et al.[26]				√	√
Zoeller [27]					√
Filocamo et al.[28]					√
Black and Brockway-Lunardi[29]	√					√
Godard et al. [30]			√		√
*Haga et al.[31]					√
*O'Daniel et al.[32]					√
Terry et al.[33]	√				√	√
Pulver et al.[34]				√
Arturi [35]	√				√	√
Baart and Abma [36]	√	√	√
Boon and Broekgaarden [37]						√
Van Olphen et al. [38]	√
Haddow et al.[39]					√
Riter and Weiss[40]	√	√	√
Mollan et al. [42]			√	√		√
Costello and Dorris[43]	√	√	√			√
Davies et al. [45]			√	√
Taruscio et al.[46]				√
Moore et al.[47]		√			√
Mahler and Besser[48]		√
Birch et al. [49]					√
Total (%)⁎⁎	9 (31)	8 (28)	12 (41)	10 (34)	14 (48)	6 (21)

Methods of stakeholder recruitment were categorized using the following criteria:

Community outreach: town hall meetings with community leaders or visiting schools

Health system: health care providers

Patient organizations: advocacy groups or charitable organizations

Other: personal or professional referrals

Social marketing: advertisements on radio, TV, newspapers, social media, and public spaces such as churches, schools, libraries and waiting rooms

Abbreviations: N/R = Not reported

^⁎Denotes articles describing the same study.

^⁎⁎Percentages were generated using n=29 as the denominator.