Table 3.
Benefits | Studies |
---|---|
A mutual learning opportunity [R/P] | 16 |
Patient engagement facilitates patient partner understanding and interest in basic science research | |
Patient partners can improve researcher understanding of the real-life priorities and impact of their work | |
An opportunity to build new skills, knowledge, interests, and perspectives [R/P] | 13 |
Engagement experiences can inform and broaden perspectives of researchers | |
Engaging a diverse patient partner group provides a greater understanding of diverse experiences | |
Patient partner input can improve study quality and efficiency [R/P] | 9 |
Patient engagement informs the research question, study methodology, and future research by fostering important discussions | |
Patient partners can play an important role in disseminating research findings | |
Improves communication with the public and strengthens the research through trust [R/P] | 8 |
Encourages a sense of partnership (between patients and researchers) and improves patient partner trust of the research community | |
Increases self-confidence and the impact of the patient voice | |
May increase trainee recruitment/retention, external collaboration, and recruitment [R] | 5 |
There is potential to create external partnerships that are rare for professional engagements | |
Improved trainee retention by renewing interest in the real-life implications of their research | |
Challenges | Studies |
Differences in research knowledge and experience between research and patient partner populations might affect the quality of research and limit meaningful engagement [R/P] | 3 |
Patient partners have difficulties connecting with future innovations | |
Engaging few patient partners can limit diverse perspectives | 1 |
Abbreviations: R and P denote themes that pertain to researchers and patient partners, respectively.