Table 4.
Barriers | Studies |
---|---|
Addressing the priorities of all team members can be difficult to achieve [R] | 8 |
It is challenging to capture diverse viewpoints and research priorities from members with different research backgrounds | |
Structural barriers to patient engagement exist [R] | 7 |
Insufficient researcher resources to support patient partners including time and budget restrictions | |
Defining the patient partner population to recruit can be challenging [R] | 5 |
Recruitment may inadvertently exclude members of particular groups | |
Lack of researcher training opportunities to guide meaningful patient engagement in basic science research [R/P] | 4 |
Lack of research experience, preparation, and clarity around patient engagement expectations | |
Enablers | Studies |
Creating a safe space where patient partners and researchers feel comfortable to collaborate [R/P] | 6 |
Ensure team members feel comfortable in sharing individual views | |
Distribute learning materials before and after meetings | |
Consider arranging the team structure to support patient engagement [R/P] | 5 |
Training and resources for researchers to overcome challenges | |
Critically building study team composition including an engagement coordinator | |
Develop patient engagement strategies ahead of time [R] | 2 |
Plan for equitable division of responsibilities to reduce the burden on the project team and help partners feel more invested | |
Consider the needs of the community | |
External organizations that actively support patient engagement in basic science research projects [R/P] | 1 |
Enforcing and facilitating the involvement of patient partners |
Abbreviations: R and P denote themes that pertain to researchers and patient partners, respectively.