Table 1.
Characteristics of patients and their caregivers
| Characteristic | % (n) | |
|---|---|---|
| Baseline (n = 96) | Follow-up (n = 84) | |
| Child participants | ||
| Age (year), mean (SD) | 10.5 (2.2) | 10.7 (2.2) |
| 8–10 | 54.2 (52) | 50.0 (42) |
| 11–17 | 45.8 (44) | 50.0 (42) |
| Sex | ||
| Boys | 64.6 (62) | 60.7 (51) |
| Girls | 35.4 (34) | 39.3 (33) |
| Disease duration (month), mean (SD) | 14.6 (18.8) | 11.9 (17.8) |
| Diagnosis | ||
| Acute lymphoblastic leukaemia | 47.9 (46) | 47.6 (40) |
| Non-Hodgkin’s lymphoma | 26.0 (25) | 26.2 (22) |
| Acute myeloid leukaemia | 11.5 (11) | 13.1 (11) |
| Rhabdomyosarcoma | 4.2 (4) | 3.6 (3) |
| Osteosarcoma | 3.1 (3) | 2.4 (2) |
| Other haematological malignancies | 7.3(7) | 7.1 (6) |
| ECOG | ||
| 0 | 16.7 (16) | 19.0 (16) |
| 1 | 56.3 (54) | 53.6 (45) |
| 2 | 20.8 (20) | 21.4 (18) |
| 3 | 6.3 (6) | 6.0 (5) |
| SRH | ||
| Excellent | 21.8 (21) | 20.2(17) |
| Good | 35.4 (34) | 35.7 (30) |
| Fair | 41.7 (40) | 42.9 (36) |
| Poor | 1.0 (1) | 1.2 (1) |
| Very poor | 0.0 (0) | 0.0 (0) |
| SRH (caregiver reported) | ||
| Excellent | 13.5 (13) | 13.1 (11) |
| Good | 37.5 (36) | 44.0 (37) |
| Fair | 41.7 (40) | 36.9 (31) |
| Poor | 6.3 (6) | 4.8 (4) |
| Very poor | 1.0 (1) | 1.2 (1) |
| Caregivers | ||
| Age (year), mean (SD) | 40.1 (9.3) | 39.0 (8.0) |
| Relationship to patient | ||
| Father | 20.8 (20) | 26.2 (22) |
| Mother | 67.7 (65) | 61.9 (52) |
| Other | 11.5 (11) | 11.9 (10) |
The performance scale defines five different performance statuses: 0 as fully active and no performance restrictions; 1 as strenuous physical activity restricted, fully ambulatory and able to carry out light work; 2 as capable of all looking after myself but unable to carry out any work activities. Up and about > 50% of waking hours; 3 as capable of only limited self-care, confined to bed or chair > 50% of waking hours; 4 as completely disabled; cannot carry out any self-care, totally confined to bed or chair; 5 as death
ECOG Eastern Cooperative Oncology Group, SRH the self-rated health