Living with stable chronic conditions |
Trajectory onset→stable (participants were diagnosed at a mild stage of the disease where conditions were stable and did not experience disease exacerbations). |
Making patient work as routinized and invisible as possible. |
7, 9, 10, 14, 15, 19, 20, 22, 23, 25, and 26 |
3.2 (1.7) |
Dealing with cycles of acute or crisis episodes |
Trajectory onset→stable→unstable→acute→crisis→comeback→stable (participants have experienced episodes of disease exacerbation, sometimes repeatedly). |
Heavily multimorbid, experiencing polypharmacy, and requiring support with self-management adherence. |
2, 3, 4, 8, 11, 12, 13, 17, 18, and 21 |
3.4 (1.7) |
Responding to unstable changes in their conditions |
Trajectory onset→stable→unstable (participants were diagnosed at a mild stage but are currently experiencing a decline in health). |
Experiencing increasing intensity and variety of patient work and dealing with rapid changes. |
6, 16, and 24 |
8.7 (9.7) |
Coming back from crisis before stabilizing |
Crisis→comeback→stable (participants were diagnosed due to a sudden and severe exacerbation and recovered from that crisis). |
Cope with a total loss of normal life and needing holistic support. |
1 and 5 |
1.5 (0.7) |