Table 2.

Future Care Values and Preferences; Closed Ended Workbook Responses

	Ranked Questions	N (%)
Decision-Making	As a patient I’d like to know ___ about my condition and treatment.
	The basics	6 (14%)
	Mixed preferences	3 (7%)
	The details	33 (75%)
	If I had a terminal illness, I would prefer to ___.
	Not know how quickly it is progressing	16 (36%)
	Mixed preferences	4 (9%)
	Know my doctor’s best estimation for how long I have to live	23 (52%)
	As I receive care, I would like ___.
	My health care team to do what they think is best	8 (18%)
	Mixed preferences	3 (7%)
	To have a say in every health care decision	31 (70%)
Family/Friend Involvement	How involved do you want your loved ones to be?
	Do exactly what I’ve said, even if it makes them uncomfortable	21 (48%)
	Mixed preferences	9 (20%)
	Do what brings them peace, even if it goes against what I’ve said	10 (23%)
	When it comes to your privacy [at death], ___.
	When the time comes, I want to be alone	7 (16%)
	Mixed preferences	8 (18%)
	I want to be surrounded by my loved ones	25 (57%)
	When it comes to sharing information about my illness with others, ___.
	I don’t want my loved ones to know everything	4 (9%)
	Mixed preferences	5 (11%)
	I am comfortable with loved ones knowing everything	32 (73%)
Treatment Care	How much medical treatment do you want to try?
	Every treatment available, no matter how uncomfortable I become	9 (20%)
	Mixed preferences	8 (18%)
	Quality of life is more important to me than quantity	24 (55%)
	What are your concerns about medical treatments?
	I worry that I won’t get enough care	9 (20%)
	Mixed concerns	29 (66%)
	I worry that I’ll get too much care	3 (7%)
	What are your preferences about where you want to be?
	I want to spend my last days in a health care facility	14 (32%)
	Mixed preferences	5 (11%)
	I want to spend my last days at home	21 (48%)