Table 3.
Content Code Evolution: Care Preferences
| Excerpts | Codes (Sentiment) | Categories | |
|---|---|---|---|
| Directed | "I want to know all about my condition and treatment process" (“John”, 87) | Being Informed (All the details) | Decision Making |
| "I would prefer that I have control in decision making process" (“Brett”, 52) | Shared Decisions: Health Team (A say in every decision) | ||
| "Most my family know what I want. Respect my decision. Go along with my decisions." (“Jim”, 76) | SDM Flexibility (Do exactly what I’ve said) | Family/Friend Involvement | |
| "I want my family around me, soft classical music. Have comfortable area for my family around me." (“Geoff”, 86) | Bedside Company (Surrounded by loved ones) | ||
| "It is important that my family is aware of my health condition." (“Julie”, 69) | Sharing Information (Know everything) | ||
| "Quality is more important than quantity of time" (“Bette”, 92) | Quantity vs Quality of Life (Quality > Quantity) | Treatment Care | |
| "I remember my husband's EOL and I don't want to be in that situation, in and out of the hospital 3 times and it was unpleasant" (“Becca”, 82) | Treatment Care (Overly aggressive care) | ||
| "I want it to be pain free and want to be at home at the end-of-life" (“John”, 87) | Death Location (At home/LTC) | ||
| Emergent | "I just want to thank them for doing their best to help me" (“Martha”, 68) | Saying Thank-You | Interpersonal Communication |
| "Saying good bye to the ones that I love" (“Ellen”, 88) | Saying Good-bye | ||
| "last rights" (“Mary”, 76) | Deathbed Religious Rituals | Religious & Cultural | |
| "[I want to be sure to say] that I am leaving this life here to be with my Saviour, Jesus, who loves and cares for us all." (“Luke”, 88) | Valuing Heaven | ||
| "making sure my will is in order and my finances will go to my oldest son for emergencies" (“Jane”, 70) | Estate Planning | Post-Mortem Preparations | |
| "No memorial service" (“Stuart”, 81) | Funeral Planning |