Table 2.
Responses to Selected Items of PRISM-PC Survey (Boustani et al., 2008).
| PRISM-PC SURVEY* Frequency / Percent% | |||
|---|---|---|---|
| QUESTION (AD = Alzheimer’s disease) | No | Yes | Maybe |
| 1. I would like to know if I am at higher risk than others for developing AD | 2/9.5 | 18/85.7 | 1/4.8 |
| 2. I would like to know if I have AD | 1/4.8 | 19/90.5 | 1/4.8 |
| 3. I would like to know if I have a problem with memory | 1/4.8 | 20/95.2 | – |
| 4. I would like to be tested for AD with a short questionnaire | 2/9.5 | 19/90.5 | – |
| 5. I would like to be tested for AD with a blood sample | 2/9.5 | 16/76.2 | 3/14.3 |
| 6. I would like to be tested for AD with pictures of my head or brain | 2/9.5 | 16/76.2 | 3/14.3 |
| 7. I would like a doctor to examine me every year to know if I have developed memory problems | 2/9.5 | 17/81 | 2/9.5 |
| 8. I would like a doctor to examine me every year to know if I have developed AD | 2/9.5 | 17/81 | 1/4.8 |
| 9. I do not believe treatment for AD is currently available | 14/67 | 4/19 | 3/14.3 |
| 10. Early detection of AD increases the chance to treat the disease better | – | 20/95.2 | 1/14.8 |
| *11. If I knew that I have AD, my family would suffer financially | 7/33.3 | 10/47.6 | 4/19 |
| *12. If I knew earlier that I have AD, my family would suffer emotionally | 5/23.8 | 13/61.9 | 3/14.3 |
| 13. If knew earlier that I have AD, my family would have a better chance to take care of me | 1/4.8 | 18/85.7 | 2/9.5 |
| *14. If I have AD, I would not want my family to know | 16/76.2 | 5/23.8 | – |
| *15. If I knew I have AD, I would feel humiliated by family members and others. | 19/90.5 | 1/4.8 | – |
| *16. If my friends knew I have AD, I would no longer taken seriously | 8/38.1 | 4/19 | 9/42.9 |
| *17. If I knew I have AD, I would be considered stupid and unable to do things | 15/71.4 | 2/9.5 | 4/19 |
| *18. If knew I have AD, would be ashamed or embarrassed | 15/71.4 | 3/14.3 | 3/14.3 |
| *19. If knew I have AD, I would be depressed | 7/33.3 | 7/33.3 | 7/33.3 |
| *20. If knew I have AD, I would be anxious | 7/33.3 | 9/42.9 | 5/23.8 |
| *21. If knew I have AD, I would give up on life | 20/95.2 | 1/14.8 | – |
| 22. If I found out early that I have AD, I would have more time to plan for the future | – | 21/100 | – |
| 23. If I found out early that I have AD, I would have more time to talk with family about my health care | 1/14.8 | 20/95.2 | |
| 24. If I found out early that I have AD, I would have more time to talk with family about my finances | – | 21/100 | – |
| 25. If I found out early that I have AD, I would sign my advance directive | 1/4.8 | 15/71.4 | 5/23.8 |
| *26. If I was diagnosed with AD, my doctor would not provide the best care for my medical condition problems | 1/4.8 | 14/66.7 | 6/28.6 |
| 27. If I knew earlier that I have AD, I would be motivated to have a healthier lifestyle | 2/9.5 | 17/81. | 2/9.5 |
| *28. If I am diagnosed with AD, my doctor and other health professionals would not listen to me | 14/66.7 | 2/9.5 | 5/23.8 |
| 29. If I knew earlier that I have AD, I would be more willing to participate in research about this disease | – | 21/100 | – |
| *30. If I am diagnosed with AD, I would not be able to get health insurance | 17/81 | 1/4.8 | 3/14.3 |
| *31. If I am diagnosed with AD, I am concerned that my health insurance company would find out | 17/81 | 1/4.8 | 2/9.5 |
| *32. If I am diagnosed with AD, I am concerned my employer would find out | 12/57.1 | 6/28.6 | 1/4.8 |
| *33. If I am diagnosed with AD, I will not be able to get life insurance | 11/52.4 | 2/9.5 | 7/33.3 |
| *34. If I am diagnosed with AD, I would lose my home | 18/85.7 | 3/14.3 | – |
| *35. If I am diagnosed with AD, I would be living in a nursing home | 10/47.6 | 7/33.3 | 4/19 |
*
These items are classified under the “Perceived Harms of Screening” construct. Those unmarked belong to the “Acceptance of Screening” construct.