Table 1.
Parameters considered when making a decision for tracheostomy (Yes/No or N/A).
| Parameter #centers, (% total) | Yes | No | N/A | Notes |
|---|---|---|---|---|
|
Appropriate linear growth (n = 29 responders) |
12 (41%) | 6 (21%) | 12 (41%) | 0.8–1 cm/week |
| Appropriate head growth (n = 29 responders) | 10 (35%) | 5 (17%) | 14 (48%) | 0.5–1 cm/week |
|
Right ventricular (RV) hypertrophy on echo (n = 30 responders) |
15 (50%) | 10 (33%) | 5 (17%) | No additional information reported |
| RV dilation on echo (n = 30 responders) | 18 (60%) | 7 (23%) | 5 (17%) | No additional information reported |
| RV dysfunction on echo (n = 30 responders) | 24 (80%) | 3 (10%) | 3 (10%) | No additional information reported |
|
Systemic corticosteroid exposure (n = 29 responders) |
20 (69%) | 4 (14%) | 5 (17%) | Most reported >2 courses |
Notes are written for most common ranges (>50% of hospitals) provided by institutions.