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. 2021 Jun 21;10(15):5141–5153. doi: 10.1002/cam4.4072

TABLE 1.

Major design requirements derived from background research with patients and the public

Source Issue Requirements
Patient fora Fear of poor prognosis Address language, appearance and provide links to support
Other tools provide different predictions Guidance on interpreting prognostic statistics
Averages not perceived as relevant to individuals Guidance on interpreting prognostic statistics
Predictions must be based on old data to provide long term predictions Guidance on interpreting prognostic statistics. FAQ section.
Treatment benefit sometimes perceived to be surprisingly small Ability to trade‐off benefits and adverse effects
Public survey n = 50, mean age = 37, SD = 10 Appearance too basic and impersonal Address language, appearance and provide links to support
NHS critical to instilling trust More prominence to NHS branding
Want more information about side effects Ability to trade‐off benefits and adverse effects
Outputs difficult to read/interpret Improved visualisation of results
Averages not perceived as relevant to individuals Guidance on interpreting prognostic stats
Public focus group n = 7, mean age = 46, SD = 13 Fear of poor prognosis Address language, appearance and link to support
Desire to take part in decision‐making Facilitate communication between patients and clinicians
Technical information important but incomprehensible Rewrite technical information to improve comprehension
Preference for abstract visualisations. Icons representing people too upsetting Consider emotional impact in design of graphics and labelling
Want information on side effects Ability to trade‐off benefits and harms