Patient fora |
Fear of poor prognosis |
Address language, appearance and provide links to support |
Other tools provide different predictions |
Guidance on interpreting prognostic statistics |
Averages not perceived as relevant to individuals |
Guidance on interpreting prognostic statistics |
Predictions must be based on old data to provide long term predictions |
Guidance on interpreting prognostic statistics. FAQ section. |
Treatment benefit sometimes perceived to be surprisingly small |
Ability to trade‐off benefits and adverse effects |
Public survey n = 50, mean age = 37, SD = 10 |
Appearance too basic and impersonal |
Address language, appearance and provide links to support |
NHS critical to instilling trust |
More prominence to NHS branding |
Want more information about side effects |
Ability to trade‐off benefits and adverse effects |
Outputs difficult to read/interpret |
Improved visualisation of results |
Averages not perceived as relevant to individuals |
Guidance on interpreting prognostic stats |
Public focus group n = 7, mean age = 46, SD = 13 |
Fear of poor prognosis |
Address language, appearance and link to support |
Desire to take part in decision‐making |
Facilitate communication between patients and clinicians |
Technical information important but incomprehensible |
Rewrite technical information to improve comprehension |
Preference for abstract visualisations. Icons representing people too upsetting |
Consider emotional impact in design of graphics and labelling |
Want information on side effects |
Ability to trade‐off benefits and harms |