Table. Patient Characteristics and Symptoms.
| Characteristic | No. (%) | No. of symptoms | Total symptom score | ||
|---|---|---|---|---|---|
| Mean (SD) | P value | Mean (SD) | P value | ||
| Entire sample | 501 (100) | 6.7 (3.4) | 19.6 (11.7) | ||
| Agea | |||||
| <1 mo | 19 (3.8) | 4.5 (3.2) | .001 | 12.3 (9.5) | .001 |
| 1-11 mo | 121 (24.2) | 6.3 (3.2) | 17.8 (11.0) | ||
| 1-9 y | 183 (36.5) | 6.6 (3.4) | 19.1 (11.8) | ||
| 10-17 y | 147 (29.3) | 7.1 (3.4) | 21.8 (11.4) | ||
| 18-28 y | 31 (6.2) | 8.2 (3.7) | 24.5 (12.8) | ||
| Sexa | |||||
| Female | 233 (46.5) | 6.4 (3.5) | .11 | 18.8 (11.7) | .11 |
| Male | 267 (53.3) | 6.9 (3.3) | 20.4 (11.6) | ||
| Racea | |||||
| White | 356 (71.1) | 6.6 (3.3) | .62 | 19.1 (11.3) | .51 |
| Black | 42 (8.4) | 7.4 (3.3) | 21.5 (11.5) | ||
| Asian | 15 (3.0) | 6.7 (3.6) | 20.3 (13.8) | ||
| Native population | 25 (5.0) | 6.7 (4.6) | 21.0 (14.7) | ||
| Otherb | 63 (12.6) | 7.0 (3.4) | 21.4 (12.3) | ||
| Ethnicitya | |||||
| Hispanic | 75 (15.0) | 6.1 (3.2) | .24 | 17.7 (11.2) | .28 |
| Non-Hispanic | 412 (82.4) | 6.8 (3.4) | 20.0 (11.8) | ||
| Not indicated | 13 (2.6) | 6.5 (3.5) | 18.6 (10.9) | ||
| Technology dependentc | 438 (87.4) | 6.8 (3.4) | .02 | 20.2 (11.8) | .009 |
| CCC typec | |||||
| Gastrointestinal | 357 (71.3) | 6.8 (3.4) | .32 | 20.2 (11.6) | .11 |
| Neuromuscular | 289 (57.7) | 6.7 (3.6) | .45 | 20.4 (12.4) | .10 |
| Cardiovascular | 310 (61.9) | 6.7 (3.5) | .91 | 19.7 (12.2) | .94 |
| Metabolic | 256 (51.1) | 7.1 (3.3) | .001 | 21.3 (11.5) | .001 |
| Respiratory | 206 (41.1) | 6.7 (3.4) | .98 | 19.9 (11.7) | .68 |
| Renal | 206 (41.1) | 7.0 (3.4) | .14 | 20.6 (11.8) | .12 |
| Congenital | 209 (41.7) | 7.1 (3.4) | .14 | 21.0 (12.1) | .03 |
| Malignant neoplasm | 150 (29.9) | 6.9 (3.3) | .39 | 20.0 (11.2) | .65 |
| Hematologic | 175 (34.9) | 6.8 (3.2) | .71 | 20.0 (11.2) | .61 |
| Neonatal | 117 (23.4) | 6.6 (3.5) | .57 | 19.3 (11.6) | .75 |
| Transplant | 70 (14.0) | 6.7 (3.6) | .69 | 18.6 (11.9) | .41 |
| No. of CCCsd | |||||
| 1 | 15 (3.0) | 4.1 (2.6) | .02 | 10.9 (7.3) | .002 |
| 2 | 24 (4.8) | 6.6 (3.6) | 17.8 (12.0) | ||
| 3 | 39 (7.8) | 6.2 (3.4) | 17.0 (10.1) | ||
| 4 | 59 (11.8) | 6.5 (3.4) | 19.2 (12.0) | ||
| 5 | 105 (21.0) | 6.8 (3.4) | 20.5 (12.0) | ||
| 6 | 93 (18.6) | 7.2 (3.4) | 20.9 (11.9) | ||
| 7 | 83 (16.6) | 6.7 (2.9) | 19.4 (10.4) | ||
| 8 | 52 (10.4) | 6.2 (3.7) | 18.1 (11.9) | ||
| 9 | 23 (4.6) | 7.3 (3.1) | 23.7 (11.8) | ||
| 10 | 8 (1.6) | 9.9 (3.5) | 32.5 (13.2) | ||
Abbreviation: CCCs, complex chronic conditions.
a
Analysis of variance used to assess differences in means for the categorical variables.
b
Indicated as other, preferred not to answer, or multiple race.
c
The t test was used to assess differences of means for patients with each specific CCC type of diagnoses that differed from the mean of all other patients without that specific CCC type of diagnoses.
d
Ordinary least-squares linear regression was used to test whether the mean values increased as the number of CCCs increased.