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. 2021 Jul 27:jsab058. doi: 10.1093/jpepsy/jsab058

Table IV.

Themes, definitions and example quotes extracted from the qualitative analysis.

Themes Definition Example quotes
Shared themes
Family cohesion Spending more time together as a family, sharing activities, dedicating more time to children and achieving a greater sense of unity.

“We were able to spend more time at home and enjoy her [their daughter], which is something we were not able to do before”.—Mother of a 10-year-old female, SOT group.

 

“Better relationships between our children, more time to help them do homework and becoming aware of their difficulties”.—Mother of a 12-year-old male, control group.

Conciliation difficulties Difficulties adapting to spending all the time together in the same place and reconciling work, kids’ schoolwork and household chores.

“On numerous occasions, it was really overwhelming, the fact of having to work constantly together with the children's classes and homework plus the household chores, everything was so chaotic”—Mother of a 16-year-old male, control group.

 

“Difficulties caring for two little kids, trying to teach them as best as I could what they were doing in school and also working 100% from home”.—Mother of a 6-year-old male, control group.

Social impact Lack of in-person contact and sense of isolation from usual social and familiar networks, and the associated worries.

“They [the children] lost every close relationship with their friends or teachers”.—Mother of a 7-year-old male, control group.

 

“The loss of contact with other children was the worst part, she [their daughter] has compensated it with more time on the tablet”.—Mother of a 10-year-old female, control group.

 

“The main problem was the impossibility to travel to our hometown to visit our other daughter”.—Father of a 5-year-old male, SOT group.

Psychological impact Worsening in the psychological well-being of any family members.

“More apathy and nervousness”.—Mother of an 8-year-old male, control group.

 

“We felt really tense and apprehensive at the beginning, we had some really difficult days with some anxiety crisis”.—Mother of 11-year-old male, SOT group.

 

“The whole family had a very bad time, all of us experienced anxiety and a lot of depression”.—Mother of a 12-year-old female, SOT group.

Uncertainty Fear or worries about the future in a general or specific way (financial, work-related, academic or health concerns among others).

“Fear for the future, my husband may lose his job”.—Mother of a 17-year-old female, control group.

 

“Without doubt the most difficult part is the uncertainty of what is going to happen over the next months”.—Mother of a 17-year-old male, SOT group.

Fear of infection The specific fear that a member of the family might become infected.

“The fear of the virus, of death, of going out and becoming infected”.—Mother of a 6-year-old male, control group.

 

“Facing what is going to happen and knowing that we are all exposed to the infection is the worse part”.—Mother of a 17-year-old female, SOT group.

Habits and activities Change, reduction or increase of habits and activities as a response to the pandemic and its restrictions.

“Less outdoor activities and less exercise”.—Mother of a 14-year-old female, SOT group.

 

“The youngest one has developed an extreme attachment to technology devices”.—Mother of a 4-year-old male, control group.

 

“Our routines were absolutely out of control”.—Mother of a 15-year-old male, control group.

Specific themes
Less stigmatization Decreased sense of feeling different or having to take different actions from others in relation to the transplant process and associated aspects.

“We experienced some relief when we saw that having to protect us from the virus or wearing a mask was not only about us”.—Mother of a 13-year-old male, SOT group.

 

“The massive use of masks help transplanted people not to feel bad about wearing one, since they usually wear one”—Mother of an 8-year-old male, SOT group.

Prevention Measures Being already used to practicing prevention measures that are similar to those imposed during the pandemic and eased the adaptation to the pandemic and its restrictions.

“For my daughter it was not that hard since we were used to being locked at home”.—Mother of an 8-year-old female, SOT group.

 

“We managed the lockdown itself quite well because we have already been through it on two occasions. We built some routines and used our imagination to overcome boredom”.—Mother of a 10-year-old male, SOT group.

Perception ofchild withSOT healthimprovement/safeness Perceived improvements in their children's health status that are directly linked to the pandemic and its restrictions.

“Our daughter has not contracted any viruses, something that had never happened since her transplant, and this improved her health status a lot”.—Mother of a 10-year-old female, SOT group.

 

“For our transplanted child it was better because he started gaining weight and we believe it's because we started eating all meals at home. He has gained as much weight in three months as he had over the last four years”.—Father of an 11-year-old male, SOT group.

 

“The hygiene measures for the society are really beneficial for transplanted people”.—Mother of an 8-year-old male, SOT group.

Specific fear of infection Represents an extra fear of infecting the transplanted children together with an explicit concern about their perceived greater vulnerability.

“We suffered because of the fear of becoming infected and that our transplanted child could have severe complications”.—Mother of an 11-year-old male, SOT group.

 

“My husband is on sick leave due to psychological issues because of how COVID-19 might affect our daughter”.—Mother of an 11-year-old male, SOT group.