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. Author manuscript; available in PMC: 2022 Mar 1.
Published in final edited form as: Res Autism Spectr Disord. 2021 Jan 11;81:101719. doi: 10.1016/j.rasd.2020.101719

Table 7.

Qualitative Themes, Subthemes, Examples, Quotes, and Questions.

Themes Subthemes Examples Quotes

Theme 1. Factors related to disrupted sleep 1. Environmental factors
2. Caregiver factors
3. Child factors
1. Chaotic home environments; lack of routine 2 & 3. Aspects of parent and child behavior If I’m not paying attention, if the girls get off their routine and schedule, if there is mess everywhere, no one gets fed or gets their medicine... If I’m not paying attention, they will go for days without a bath. My husband also has autism. I can’t lose track of anything right down to his medicine and his clothes. It’s been phenomenal.. . because we travel. . . more now. So, I’m able to take the visuals with me. I tried not using it one day and I was like not doing that again.
Theme 2. Program implementation 1. Facilitators
2. Barriers
1. Education tailored to family; visual sleep aids
2. Children removing actigraphy watch; completing sleep education homework
Theme 3. Intermediate outcomes 1. Family harmony
2. Family engagement
1. Committing to program for whole family not just child
2. Parent being held accountable through homework
Once we made sure to make a conscious effort. . . he got there, and he was happy and he was better for it. We were better for it and we all got to see the results of him being there because he got better.
Theme 4. Impacts 1. Parent responses concerning improved sleep for child and caregiver
2. Appreciation for receiving sleep education in their community
It was a process and that’s the whole point. Finding what works and what doesn’t But, oh yes. Because nighttime used to be a real nightmare. Now everything to us and to her is very predictable and we know what to expect. I appreciate y’all coming out this way. It was very helpful, not having to take a trip downtown, you know, every time.

Study 1: Qualitative Interview Questions.
• Do you consider your household to be more orderly or more chaotic?
• In what ways is it more orderly or more chaotic?
• Walk me through a typical day for your family.
• How many family members are in your home?
• How many caretakers?
• What are some of the positive effects that autism has had on your life or your family’s life?
• Can you give examples of health education you have received in the past that was helpful? (ex: workshops, seminars, pamphlets, websites).
• Can you describe why or how this education was helpful?
• Have you had success in the past when you set out to change a health behavior for yourself? For your child?
• Please provide examples for your answer.
• When it is challenging to change a health behavior for yourself or your child, how do you respond and what do you when you feel challenged?
• Do you think your child and family benefited from participation in this project?
• If yes, how?
Study 2: Qualitative Interview Questions.
Section A. Family Life.
• How many family members are in your home?
• How many caretakers?
• Walk me through a typical day for your family.
• In what ways is your household more orderly?
• In what ways is it more chaotic?
Section B. Success in Changing Behavior.
• Can you think of a time you tried to change something you were doing? (For example, some people try to lose weight or quit smoking).
• Tell me some things that were successful about that process.
• Tell me some things that were challenging about that process.
• How do you respond when you feel challenged?
Section C. Participation.
• Do you think that your child and family benefited from participation in this study?
• If yes, what did you like about it?