Fig. 1.

Number of patients who experienced symptoms and disease-related attributes, n = 12 for all attributes except anxiety (n = 11), depression (n = 10), neuropathy (n = 11), reproductive functioning (n = 9), and advanced bone age (n = 11). Totals were calculated by counting the number patients for whom a given attribute is applicable and with whom a given attribute was discussed. Fatigue was not included in the original discussion guide but was raised by respondents unprompted