Table II.
Demographics and mean scores by patient
| No. | Age | Sex | EB subtype | Mean score |
|||
|---|---|---|---|---|---|---|---|
| EBDASI | iscorEB-c | iscorEB-p | QOLEB | ||||
| 1 | 16 | F | EBS-L | 8 | 1.6 | 18 | 19 |
| 2 | 73 | M | DDEB | 65 | 15.0 | 44 | 24 |
| 3 | 54 | M | DDEB | 80 | 6.8 | 18 | 8 |
| 4 | 32 | F | RDEB-GS | 222 | 49.1 | 38 | 35 |
| 5 | 25 | M | DDEB | 66 | 4.0 | 16 | 19 |
| 6 | 43 | M | DDEB | 21 | 4.7 | 38 | 14 |
| 7 | 50 | F | RDEB-GI | 92 | 12.4 | 48 | 19 |
| 8 | 44 | F | DDEB | 20 | 2.8 | 2 | 4 |
| 9 | 45 | M | JEB-GI | 86 | 15.8 | 6 | 5 |
| 10 | 58 | M | EBS-L | 14 | 0.4 | 30 | 26 |
| 11 | 25 | M | JEB-GI | 123 | 26.0 | 32 | 22 |
| 12 | 44 | M | DDEB | 50 | 9.1 | 28 | 17 |
| 13 | 41 | M | EBS-L | 6 | 0.8 | 14 | 8 |
| 14 | 56 | M | RDEB-GI | 145 | 14.9 | 28 | 8 |
| 15 | 49 | M | EBS-L | 3 | 0.5 | 16 | 21 |
DDEB, Dominant dystrophic epidermolysis bullosa; EB, epidermolysis bullosa; EBDASI, Epidermolysis Bullosa Disease Activity and Scarring Index; EBS-L, epidermolysis bullosa simplex—localized; iscorEB, Instrument for scoring the clinical outcomes of research for Epidermolysis Bullosa; JEB-GI, junctional epidermolysis bullosa—generalized intermediate; QOLEB, Quality of Life in Epidermolysis Bullosa.; RDEB-GI, recessive dystrophic epidermolysis bullosa—generalized intermediate; RDEB-GS, recessive dystrophic epidermolysis bullosa—generalized severe.