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. 2021 Aug 12;11(8):e044698. doi: 10.1136/bmjopen-2020-044698

Table 3.

Representation of themes

Themes Subthemes
Pretreatment phase Treatment phase
Challenges The time from diagnosis to treatment is a big challenge in a patient’s life which breaks him in all possible ways, be it emotionally, physically or financially.
Physical challenges
  • Physical symptoms discomfit normal activities of daily life.

  • Like household chores or even taking care of personal chores.

  • Adverse effects of drugs are experienced by many patients. These side-effects adversely impact the life of the patient.

  • Multiple drugs/pill burden is also reported to be difficult to tolerate by the patients.

Health system challenges
  • Healthcare facilities are difficult to reach because of distance.

  • The attitude of health facility personnel.

  • No proper channel or awareness about the facility.

  • The facilities at DR-TB centres are not sufficient and the distance that one has to travel to reach the centre is about 120–240 km.

  • The facilities like place and food in the hospital ward are not proper.

  • The number of days to be admitted in a hospital for treatment initiation is also longer (15 days).

Economic challenges
  • Loss of income as no work due to poor physical health.

  • Until the time patient gets DBT money for treatment only, one has to pay the large amount out of his/her pocket for travelling, food and daily necessities.

Emotional and psychological challenges
  • Due to physical ill health, he/she is dependent on others for the daily necessities, so emotional state is devastated.

  • Once a patient gets information about his TB disease particularly DR status, the hope of living just vanishes as they consider it to be a fatal disease with no cure.

Social challenges
  • Lack of involvement in social gatherings due to poor health conditions.

  • Stigmatisation is not reported by the participants but they avoid social gatherings due to their poor health condition.

DBT, direct benefit transfer; DR-TB, drug-resistant tuberculosis.