TABLE 3.

Example from the structural analysis

Citations	Themes
He was like a child when he woke up, you know with his memory. I felt the need of my presence, to keep track of information. He had no idea (11)	A necessary presence
I would rather had known this earlier. They (healthcare professionals) make it sound like you (patients) will be as normal as usually in a short time. I don’t think they (patients) need to have those information (8)	Communication with healthcare professionals on the general ward
Support, it’s really difficult to locate. I really don’t think the system is geared to handle this. I mean you can have a lot of technical instructions; you can have an Implantable Cardioverter Defibrillator and so on. That’s where they [healthcare professionals] give you good instructions. However, to help people to move on (relative crying). That’s where you are alone. (15)	The abrupt disappearance of the system