TABLE 2.
Preferences of people with three or more chronic conditions for receiving care for their chronic conditions
| N | n | % | ||
|---|---|---|---|---|
| IMCM component: Shared electronic health records | ||||
| 1. | Doctors that have medical data of me … | |||
| ‐ | are not allowed to share my data with each other, unless I give permission in a certain situation | 832 | 70 | 8.4 |
| ‐ | can share my data with each other, but it must be limited to what is really necessary | 832 | 223 | 26.8 |
| ‐ | are allowed to share my data with each other, but not with health‐care providers who are not physicians (for example, the physical therapist) | 831 | 75 | 9.0 |
| ‐ | may share my data with all health‐care providers involved in caring for my conditions | 831 | 338 | 40.7 |
| ‐ | can also share my data with organizations or persons who have to assess my situation for support from the municipality (for example, for domestic help) | 831 | 162 | 19.5 |
| ‐ | other | 831 | 15 | 1.8 |
| IMCM component: regular comprehensive assessments | ||||
| 2. | I want a comprehensive assessment of my health and functioning … | |||
| ‐ | when I find it necessary | 851 | 309 | 36.3 |
| ‐ | when my GP finds it necessary | 851 | 290 | 34.1 |
| ‐ | when my medical specialist finds it necessary | 851 | 103 | 12.1 |
| ‐ | every year anyway | 851 | 200 | 23.5 |
| ‐ | Other | 851 | 42 | 4.9 |
| 3. | A comprehensive assessment of my health and functioning … | |||
| ‐ | must be limited to my physical health | 813 | 217 | 26.7 |
| ‐ | should also be about my memory or mood, in addition to my physical health | 813 | 160 | 19.7 |
| ‐ | should be about my entire situation, so not only about my medical situation and how I feel, but also how it goes at home and in my daily life | 813 | 442 | 54.4 |
| ‐ | Other | 813 | 21 | 2.6 |
| IMCM component: self‐management support, including shared decision making | ||||
| 4. | I prefer advice and support to manage my conditions well … | |||
| ‐ | to receive from the GP | 826 | 581 | 70.3 |
| ‐ | to receive from the nurse practitioner / practice nurse | 826 | 149 | 18.0 |
| ‐ | to receive from the medical specialist | 826 | 232 | 28.1 |
| ‐ | to receive from the nurse in the hospital | 826 | 36 | 4.4 |
| ‐ | to receive from the community nurse | 825 | 23 | 2.8 |
| ‐ | to receive from someone who is a patient himself | 826 | 15 | 1.8 |
| ‐ | to receive from someone else, namely … | 826 | 42 | 5.1 |
| ‐ | not to receive | 823 | 20 | 2.4 |
| 5. | To learn how to best self‐manage my conditions … | |||
| ‐ | I would like to have conversations with the GP or nurse practitioner / practice nurse | 806 | 511 | 63.4 |
| ‐ | I (also) want to participate in group discussions with other patients, led by my GP or practice nurse | 805 | 57 | 7.1 |
| ‐ | I (also) want to participate in a course led by another health‐care provider, for example a psychologist | 806 | 49 | 6.1 |
| ‐ | I (also) want to participate in a course led by an experienced patient | 806 | 26 | 3.2 |
| ‐ | I (also) want to follow a course via the internet | 806 | 18 | 2.2 |
| ‐ | I don't want to have extra conversations or follow a course | 806 | 178 | 22.1 |
| ‐ | Other | 806 | 69 | 8.6 |
| 6. | I prefer decisions about the care or treatment I receive | |||
| ‐ | to make as much as possible myself (if necessary together with my loved ones) | 851 | 316 | 37.1 |
| ‐ | to make as much as possible together with the GP | 851 | 421 | 49.5 |
| ‐ | to make as much as possible together with the specialist | 851 | 153 | 18.0 |
| ‐ | to leave them to the GP | 851 | 38 | 4.5 |
| ‐ | to leave them to the medical specialist | 851 | 24 | 2.8 |
| ‐ | Other | 851 | 35 | 4.1 |
| IMCM component: care coordination | ||||
| 7. | I prefer organizing the care or support I need … | |||
| ‐ | to do it myself (if necessary together with my loved ones) | 849 | 509 | 60.0 |
| ‐ | to leave it to the GP or nurse practitioner / practice nurse | 849 | 245 | 28.9 |
| ‐ | to leave it to the medical specialist or nurse in the hospital | 849 | 71 | 8.4 |
| ‐ | to leave it to the community nurse | 849 | 15 | 1.8 |
| ‐ | other | 849 | 72 | 8.5 |