Table 3.
Unmet needs
| Domains | Requested domains | Prime domains | ||
|---|---|---|---|---|
| Social and familial life | ||||
| Family | 2 | 4.0% | 0 | 0.0% |
| Couple | 3 | 6.0% | 0 | 0.0% |
| Children | 2 | 4.0% | 0 | 0.0% |
| Friends | 3 | 6.0% | 0 | 0.0% |
| Romantic encounter | 1 | 2.0% | 0 | 0.0% |
| Risky driving | 2 | 4.0% | 0 | 0.0% |
| To have a child | 8 | 16.0% | 4 | 8.0% |
| To discuss of specific illness | 1 | 2.0% | 0 | 0.0% |
| Professional life | ||||
| Study/job | 9 | 18.0% | 2 | 4.0% |
| Internship abroad | 1 | 2.0% | 1 | 2.0% |
| Sick leave | 2 | 4.0% | 1 | 2.0% |
| Social rights | 2 | 4.0% | 1 | 2.0% |
| Revenues | 3 | 6.0% | 0 | 0.0% |
| Mutual insurances | 4 | 8.0% | 2 | 4.0% |
| Transports | 3 | 6.0% | 0 | 0.0% |
| Sexual life | ||||
| Libido | 4 | 8.0% | 0 | 0.0% |
| Body image | 3 | 6.0% | 0 | 0.0% |
| Shortness of breath | 4 | 8.0% | 0 | 0.0% |
| Contraception | 1 | 2.0% | 0 | 0.0% |
| Comfortable positions | 0 | 0.0% | 0 | 0.0% |
| Venereal disease | 0 | 0.0% | 0 | 0.0% |
| Pain | 1 | 2.0% | 0 | 0.0% |
| Psychological feeling | ||||
| Mood | 6 | 12.0% | 1 | 2.0% |
| Self-worth | 2 | 4.0% | 1 | 2.0% |
| Self-efficacy | 2 | 4.0% | 0 | 0.0% |
| Motivation | 3 | 8.0% | 1 | 2.0% |
| Anxiety | 2 | 4.0% | 0 | 0.0% |
| Lose interest | 3 | 6.0% | 1 | 2.0% |
| Symptoms related to the specific disease | ||||
| Pains | 2 | 4.0% | 0 | 0.0% |
| Fatigue | 10 | 20.0% | 4 | 8.0% |
| Sleep quality | 2 | 4.0% | 1 | 2.0% |
| Bladder weakness | 1 | 2.0% | 0 | 0.0% |
| Digestive gases | 1 | 2.0% | 0 | 0.0% |
| Smelly stool odour | 1 | 2.0% | 0 | 0.0% |
| constipation/diarrhea | 4 | 8.0% | 1 | 2.0% |
| Cough | 6 | 12.0% | 0 | 0.0% |
| Sputum | 3 | 6.0% | 0 | 0.0% |
| Mycosis | 1 | 2.0% | 1 | 2.0% |
| Daily life organisation | ||||
| Daily shopping/housework | 3 | 6.0% | 0 | 0.0% |
| Rest time | 1 | 2.0% | 1 | 2.0% |
| Planning of occupations/nursing | 1 | 2.0% | 0 | 0.0% |
| Hygiene | 2 | 4.0% | 0 | 0.0% |
| Self-sufficiency | 3 | 6.0% | 1 | 2.0% |
| Eating times | 2 | 4.0% | 0 | 0.0% |
| Leisure | ||||
| Leisure activity | 5 | 10.0% | 1 | 2.0% |
| Sports | 8 | 16.0% | 1 | 2.0% |
| Costs | 2 | 4.0% | 0 | 0.0% |
| Holidays | 3 | 6.0% | 0 | 0.0% |
| Vacation abroad | 4 | 8.0% | 1 | 2.0% |
| Treatments | ||||
| Regularity | 4 | 8.0% | 2 | 4.0% |
| Interruption | 1 | 2.0% | 0 | 0.0% |
| Limitation | 1 | 2.0% | 0 | 0.0% |
| Logistical supports/supply | 1 | 2.0% | 0 | 0.0% |
| Efficacy | 1 | 2.0% | 1 | 2.0% |
| Side effects | 4 | 8.0% | 1 | 2.0% |
| Disease evolution/future | 8 | 16.0% | 2 | 4.0% |
| Fertility treatment | 3 | 6.0% | 2 | 4.0% |
| Transplantation | 3 | 6.0% | 1 | 2.0% |
| Medical advances/research | 6 | 12.0% | 3 | 6.0% |
| Project | ||||
| Personal | 4 | 8.0% | 1 | 2.0% |
| Professional | 5 | 10.0% | 1 | 2.0% |
| Other | 1 | 2.0% | 0 | 0.0% |
| None domains marked | 24 | 48.0% | ||
| Domains considered to be unnecessary or repetitive | ||||
| Sports | 1 | 2.0% | ||
| Shopping/housework | 1 | 2.0% | ||
| Usual treatments | 1 | 2.0% | ||
Data are expressed as frequency (percentage)