Table 4.
Category | Description | Program experience | Suggested actions |
---|---|---|---|
People | Networking opportunities within program | Provide opportunities for inter-project networking, especially between funding rounds and geographically distance project teams. |
− All of program meetings or symposiums − Facilitate meeting between projects with similar needs or intersecting interests − Seminars series |
Learning opportunties | Genomics is complex and new to many stakeholders. Queensland Genomics used the experienced stakeholder to upskill others. |
− Multi-disciplinary team meetings to discuss project cases that are open to non-project members − Supporting projects to develop education resources for their discipline |
|
Project implementation | Project coordinators | Projects struggled to establish themselves without a project coordinator, and this role was not factored into budgets or hiring was delayed. |
− Include project co-ordinators as a line item in budget or as an expectation in project development or granting documentation − Support sharing of project co-ordinators as a resource across multiple projects |
Project specific-milestones | The main milestone for clinical projects was the number of patients sequenced, however this was not appropriate for some. For health implementation the process of establishing a health system embedded process is critically important. | − Plan projects milestones or deliverables to focus on areas that impactful for the individual project | |
Program design | Consumer and Community Engagement | Patient and health consumer input was beneficial for identifying unmet needs within the program and maintaining a patient-centred focus to the body of work. |
− Establish a program wide consumer and community engagement plan with mechanism and expectations for project implementation − Include community and consumer engagement as a line item in budget − Supporting community-led, designed or initiated projects |
Flexibility in program design | Adaptive approach allowed the program to grow and develop the program as knowledge of genomics in the health system increased. |
− Mechanisms for approval of new initiatives or changes to program by Governance Oversight Group − Pathways for projects to suggest new ideas or initiatives |
|
Program support during project development | More specialities can be involved in health system implementation program if there is are opportunity for supporting project development. |
− Program engagement with Executive, clinical specialties and clinical networks that have not previously shown interest in genomics − Incubator process to support under-developed projects to a stage where they can be funded |
|
Program wide data sharing | Plan internal and external sharing of data early in the program. |
− Contractual requirement for incorporating data sharing − Standardised program template documents for data sharing |