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. 2021 Aug 18;6:71. doi: 10.1038/s41525-021-00234-4

Table 4.

Lessons from the Queensland Genomics program.

Category Description Program experience Suggested actions
People Networking opportunities within program Provide opportunities for inter-project networking, especially between funding rounds and geographically distance project teams.

− All of program meetings or symposiums

− Facilitate meeting between projects with similar needs or intersecting interests

− Seminars series

Learning opportunties Genomics is complex and new to many stakeholders. Queensland Genomics used the experienced stakeholder to upskill others.

− Multi-disciplinary team meetings to discuss project cases that are open to non-project members

− Supporting projects to develop education resources for their discipline

Project implementation Project coordinators Projects struggled to establish themselves without a project coordinator, and this role was not factored into budgets or hiring was delayed.

− Include project co-ordinators as a line item in budget or as an expectation in project development or granting documentation

− Support sharing of project co-ordinators as a resource across multiple projects

Project specific-milestones The main milestone for clinical projects was the number of patients sequenced, however this was not appropriate for some. For health implementation the process of establishing a health system embedded process is critically important. − Plan projects milestones or deliverables to focus on areas that impactful for the individual project
Program design Consumer and Community Engagement Patient and health consumer input was beneficial for identifying unmet needs within the program and maintaining a patient-centred focus to the body of work.

− Establish a program wide consumer and community engagement plan with mechanism and expectations for project implementation

− Include community and consumer engagement as a line item in budget

− Supporting community-led, designed or initiated projects

Flexibility in program design Adaptive approach allowed the program to grow and develop the program as knowledge of genomics in the health system increased.

− Mechanisms for approval of new initiatives or changes to program by Governance Oversight Group

− Pathways for projects to suggest new ideas or initiatives

Program support during project development More specialities can be involved in health system implementation program if there is are opportunity for supporting project development.

− Program engagement with Executive, clinical specialties and clinical networks that have not previously shown interest in genomics

− Incubator process to support under-developed projects to a stage where they can be funded

Program wide data sharing Plan internal and external sharing of data early in the program.

− Contractual requirement for incorporating data sharing

− Standardised program template documents for data sharing