Table 1.

Terms and synonyms used to inform the search

Group	Terms
1. Qualitative methodology	Interview Focus group Fieldwork Discussion	Ethnography Questionnaire Qualitative	Phenomenological Grounded theory Narrative
2. Dementia	Dementia Lewy body disease	Alzheimer’s disease Frontotemporal degeneration	Frontotemporal disorder
3. Outcomes	Need Want Demand Domain Important	Well-being Quality of life Prefer Satisfaction Impact	View Outcome Hope Cope/coping Expect
4. Lived experience	Experience Meaning Perception Understanding Subjective	Everyday/daily life Narrative Perspective Scheme Existence	Representation Value Belief Identity Self