Table 5:
Categories of parental comments regarding concerns, challenges, and areas of improvement of care for children with MFDM.
| Development | Overall | 35/45 (77.8%) |
| Communication | 23/35 (65.7%) | |
| Developmental delays | 13/35 (36.1%) | |
| Health | Overall | 17/45 (40.0%) |
| Feeding difficulties | 7/17 (35.3%) | |
| Neurologic problems | 5/17 (29.4%) | |
| Hearing problems | 4/17 (23.5%) | |
| Uncertain future | Overall | 12/45 (26.7%) |
| Challenges in caring for their child | Overall | 13/43 (30.2%) |
| Improved support in caring for their child | Overall | 21/28 (75%) |
| Improved provider expertise | 8/21 (38.1%) | |
| Improved provider communication | 4/21 (19.1%) | |
| Improved health care for their child | 6/21 (28.6%) | |
| Improved support for development | Overall | 13/28 (46.4%) |
MFDM = mandibulofacial dysostosis with microcephaly