Table 3.
Data saturation matrix for symptoms and impacts
| Participant numbera | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| C102 | C101 | C103 | C104 | C105 | C106 | C108 | C107 | C109 | C110 | |
| SYMPTOMS | ||||||||||
| Muscle-related | ||||||||||
| Muscle weakness | S | S | S | S | S | S | S | |||
| Muscle breakdown | S | S | S | S | S | S | ||||
| Physical function | ||||||||||
| Difficulty walking distances | S | S | S | S | S | S | S | S | S | |
| Slower walking | S | S | S | S | S | S | ||||
| Difficulty with stairs | P | S | S | P | S | S | ||||
| Difficulty getting up off the floor | S | S | S | S | S | S | S | |||
| Poor balance | S | S | P | |||||||
| Difficulty lifting/carrying | P | P | P | S | S | S | S | P | S | |
| Difficulty writing/drawing | S | S | S | S | S | P | S | |||
| Difficulty with fine motor skills | P | P | S | S | S | S | P | |||
| Fatigue/tiredness | S | S | S | S | S | S | S | S | ||
| Cognitive-behavioural | ||||||||||
| Learning/memory difficulties | S | S | P | S | S | S | P | P | P | |
| Difficulty focusing/concentrating | S | S | S | P | P | S | P | |||
| Communication/language difficulties | P | S | S | S | ||||||
| Aggressive behaviour | S | S | S | S | ||||||
| Autistic/ADHD spectrum behaviours | S | S | S | S | S | S | S | |||
| Pain/discomfort | ||||||||||
| Lower limb pain/discomfort | S | S | S | P | P | P | ||||
| Upper body pain/discomfort | S | P | ||||||||
| IMPACTS | ||||||||||
| Daily activities | ||||||||||
| School/nursery | S | S | S | S | S | S | S | S | S | S |
| Self-care | S | S | S | S | S | S | S | S | S | |
| Social activities | ||||||||||
| Difficulty keeping up with others | S | S | S | S | S | S | S | S | ||
| Missing out/avoiding social situations | S | S | S | P | S | S | S | |||
| Emotional wellbeing | ||||||||||
| Upset/sadness | S | S | S | S | S | S | S | |||
| Frustration | S | S | S | S | S | S | ||||
| Anxiety | S | P | S | S | S | |||||
| Confidence/self-esteem | P | S | S | P | S | |||||
aParticipant numbers are presented in the order the interviews were conducted. S = spontaneously reported impacts, P = probed impacts. Impacts were considered spontaneously reported unless explicitly probed. Bold letters indicate the first spontaneous report