Table 5.
Care-Seeking Behaviors
| All (n = 144) | AYA-aged survivors of pediatric cancer (n = 92) | AYA-aged survivors of AYA cancer (n = 35) | Adult-aged (≥40 y) survivors of pediatric or AYA cancera(n = 17) | |
|---|---|---|---|---|
| Primary care provider (PCP) identified | ||||
| Yes | 134 (93%) | 88 (96%) | 29 (83%) | 17 (100%) |
| Active patient, seen within 2 years | 69 (51%) | 39 (44%) | 19 (66%) | 11 (65%) |
| Last known cancer-related follow-up | ||||
| Previous cancer-related follow-up ≤1 year | 112 (78%) | 68 (74%) | 28 (80%) | 16 (94%) |
| Type | ||||
| Primary oncologist | 95 (66%) | 59 (64%) | 25 (71%) | 11 (65%) |
| Survivorship specialist | 30 (21%) | 24 (26%) | 4 (11%) | 2 (12%) |
| PCP | 9 (6%) | 4 (4%) | 2 (6%) | 3 (18%) |
| Other | 10 (7%) | 5 (5%) | 4 (11%) | 1 (6%) |
| Referral source | ||||
| Pediatric Hematology/Oncologya | 71 (49%) | 62 (67%) | 9 (26%) | 0 (0%) |
| Adult Hematology/Oncologya | 34 (24%) | 10 (11%) | 12 (34% | 12 (71%) |
| Self-referred | 25 (17%) | 10 (11%) | 12 (34%) | 3 (18%) |
| Other (e.g., PCP and other specialist)b | 14 (10%) | 10 (11%) | 2 (6%) | 2 (12%) |
a
Providers within the medical center.
b
Providers within and outside the medical center.
AYA-aged defined as 15–39 years old.