Table 7.
Resource availability and general needs: present and future.
| Items | YEAR 2020 | TREND 2030 | |||||
| Currently There Is Sufficient Availability of This Resource. | By 2030, Availability of This Resource Will… | ||||||
| Resources in NHS and Neurology Services | (Strongly Disagree | (Strongly) Agree | Consensus | ▼ | = | ▲ | Consensus |
| Number of nurses specialized in movement disorders | 99% | 1% | Disagree | 4% | 31% | 65% | Undetermined |
| New technologies available | 97% | 3% | Disagree | 1% | 33% | 66% | Undetermined |
| Number of daycare centers for patients with PD | 97% | 3% | Disagree | 5% | 36% | 59% | Undetermined |
| Time dedicated to the medical visit with the patient | 97% | 3% | Disagree | 1% | 59% | 40% | Undetermined |
| Health care protocols and action plans | 95% | 5% | Disagree | 0% | 20% | 80% | Increase ▲ |
| Number of MDU units | 95% | 5% | Disagree | 0% | 38% | 62% | Undetermined |
| Number of neurologists specialized in PD | 95% | 5% | Disagree | 1% | 44% | 55% | Undetermined |
| General Needs | |||||||
| This Item Is a General Need in Management of PD | By 2030 the Level of Satisfaction of This Need Will… | ||||||
| (Strongly) Disagree | (Strongly) Agree | Consensus | ▼ | = | ▲ | Consensus | |
| PD Awareness | |||||||
| Make patients visible to raise awareness and knowledge of PD | 5% | 95% | Agree | 0% | 39% | 61% | Undetermined |
| Work together on policies for the patient’s reintegration into society, both socially and in the workplace | 8% | 92% | Agree | 0% | 42% | 58% | Undetermined |
| Raise awareness of the notable role that patient associations have in the treatment of PD and collaborate with them (e.g., raising public awareness). | 12% | 88% | Agree | 0% | 35% | 65% | Undetermined |
| Training and Education | |||||||
| Adequately train caregivers in the management of the patient and the disease | 1% | 99% | Agree | 0% | 36% | 64% | Undetermined |
| Adequately train patients in the management of their own disease | 1% | 99% | Agree | 0% | 38% | 62% | Undetermined |
| Promote and provide good training for neurologists who assess the degree of disability | 7% | 93% | Agree | 0% | 49% | 51% | Undetermined |
| Promote and provide good training for PCPs who assess the degree of disability | 11% | 89% | Agree | 1% | 55% | 43% | Undetermined |
| Resources | |||||||
| Have specialized protocols aimed at PCP and general neurologists | 4% | 96% | Agree | 0% | 46% | 54% | Undetermined |
| Ensure proper counseling and psychological support for the patient and family throughout the disease course | 4% | 96% | Agree | 0% | 49% | 51% | Undetermined |
| Optimize the ratio patients per specialist (neurologists…) | 4% | 96% | Agree | 1% | 51% | 47% | Undetermined |
| Provide more resources to hospital centers (MDU, etc.) | 5% | 95% | Agree | 1% | 45% | 54% | Undetermined |
| Involve more medical specialties (primary care, geriatrics, etc.) in patient management | 8% | 92% | Agree | 0% | 59% | 41% | Undetermined |
| Economic Impact | |||||||
| Optimize existing resources while minimizing the economic impact on society and on the health system | 3% | 97% | Agree | 3% | 56% | 41% | Undetermined |
| Reduce the economic impact on the caregiver | 3% | 97% | Agree | 5% | 58% | 37% | Undetermined |
| Reduce the economic impact on the patient | 3% | 97% | Agree | 5% | 59% | 36% | Undetermined |
| Research | |||||||
| Provide financial support for the research of new treatments for PD | 4% | 96% | Agree | 3% | 31% | 67% | Undetermined |
| Carry out detailed cost studies, including some intangible costs of notorious importance (e.g., depression) as well as the costs associated with each stage of the disease | 9% | 91% | Agree | 1% | 44% | 54% | Undetermined |
All panelists (n = 75) answered all questions. Percentages of panelists in each category and consensus after the second round of votes are shown. Bold % indicates that 70% consensus was achieved. MDU: movement disorder units. PCP: primary care physician. PD: Parkinson’s disease. ▼: it will decrease; =: it will not change; ▲: it will increase.