Table 2.
Stakeholder discussion responses related to burnout and stress.
| Stakeholder | Primary cause of stress/burnout for informants | ||||||
| Confusion navigating the health care system/insurance | Schedule/organization/too much info (meds, doctors, and appointments) | Socioeconomic costs, missing work | Distance from the doctor’s office/transportation | Elderly survivor | Emotional burden/depression | Other | |
| Clinician/pharma (n=16) | 2 | 3 | 3 | 3 | 1 | 3 | 1 |
| Researcher (n=3) | 0 | 1 | 0 | 1 | 0 | 0 | 1 |
| Care partner (n=9) | 1 | 4 | 2 | 0 | 0 | 1 | 1 |
| Social worker/counselor (n=23) | 3 | 7 | 3 | 4 | 1 | 3 | 2 |
| Nurse (n=9) | 2 | 3 | 2 | 1 | 1 | 0 | 0 |
| Attorney (n=2) | 1 | 1 | 0 | 0 | 0 | 0 | 0 |
| Chief medical officer (n=1) | 0 | 0 | 0 | 0 | 0 | 1 | 0 |
| Clinician (n=17) | 0 | 3 | 4 | 3 | 3 | 4 | 0 |
| Patient advocate (n=4) | 0 | 0 | 2 | 1 | 1 | 0 | 0 |
| Chief executive officer (n=7) | 0 | 2 | 1 | 1 | 1 | 1 | 1 |
| Medical doctor (n=17) | 2 | 3 | 3 | 2 | 2 | 4 | 1 |
| Total (n=108)a | 11 | 27 | 20 | 16 | 10 | 17 | 7 |
a108 of the 132 stakeholder comments were classified into the burnout/stress category.