Table 4.
Key ABI-RESTaRT outcome measures and data availability, 1991-2020 (n=1011)
| Key outcome measures and data | Years available | Clients with data | ||
| Total number, n | Of total cohort, % | Over years available, % | ||
| Internal data | ||||
| Functional Independence Measure and Functional Assessment Measure (FIM+FAM)51 | 2011–2020 | 383 | 37.9 | 57 |
| Mayo-Portland Adaptability Inventory-4 (MPAI-4)52 | 2011–2020 | 468 | 46.3 | 69.6 |
| Goal Attainment Scale (GAS)53 | 2011–2020 | 362 | 35.8 | 53.8 |
| Quality of Life After Brain Injury Inventory (QoLIBRI)56 | 2015–2020 | 94 | 9.3 | 19 |
| Northwick Park Dependency Score (NPDS)58 | 2011–2020 | 405 | 40.1 | 60.3 |
| Northwick Park Care Needs Assessment (NCPNA)57 | 2011–2020 | 405 | 40.1 | 60.3 |
| Rehabilitation Complexity Scale (RCS)54 | 2012–2020 | 354 | 35 | 56.9 |
| External data | ||||
| Hospital admissions | ||||
| Pre-admission | 1981–2020 | 1011 | 100 | – |
| Post-discharge (follow-up) | 1991–2020 | 829 | 81.9 | – |
| Emergency department presentations | – | |||
| Pre-admission | 2002–2020 | 692 | 68.4 | – |
| Post-discharge (follow-up) | 2002–2020 | 342 | 33.8 | – |
| Mental health information system | 1981–2020 | TBD | – | – |
| Death | 1991–2020 | TBD | – | – |
Mental health data not yet received. Updated death data not yet received.
ABI-RESTaRT, Acquired Brain Injury Community REhabilitation and Support Services OuTcomes CohoRT; TBD, to be determined.